I MUST to be the WATCHDOG here! I was guilty myself until I read the information/instructions written under this forums title.

IF YOU WANT TO RESPOND TO A OCF CANCER BLOG DO IT THIS WAY:

SEND A PRIVATE MESSAGE OR E-MAIL!

HERE ARE THE INSTRUCTIONS VERBATIM:

OCF Cancer Blogs
Here you can keep a running narrative of your CANCER experiences, frustrations, thoughts, fears, successes and failures and more. Each of these is a running narrative, expressing the thoughts of a member, that are not to be replied to by others. This is an eay way to keep multiple family members and friends updated as you go through treatment if you like. Just give them the forum url address and they can check up on you here.

Note in the second sentence: "THAT ARE NOT TO BE REPLIED TO BY OTHERS"!

PS: Please Don't Shoot The Messenger!

Hi Petey, how are you doing??????? Carol

hello petey u feeling better.just don't like that,i never go there,but glad your here and felling better.hope your family is well too.

salome
lynn

Thanks Lynn

I am feeling better and the family is "ok".

I'm praying you meant shalom and not salome? Add a letter here, take a letter there, can make a big difference...

Shalom back. Petey

Dear Messenger......thanks for keeping us on the right track. I have NEVER seen anyone show such a wonderful attitude and such boundless energy so soon after such a serious surgery! You are a marvel, and I always look forward to reading your posts.

I don't want you get a swelled head, but you are quite a good writer, and when you add that to your big heart, your posts are always worth reading.

XO

Petey-

I must be confused. I thought we could reply to emails (like you did to the woman in Hello Everyone?) I will stop replying but I thought that would help people.
Thanks for the help. Just a little confused.

Jordan

Jordan--

Of course you can reply to postings -- that is the whole purpose of this board!

If you're on the message-board home page and look at the descriptions of each of the forums, you'll note that the "OCF Cancer Blogs" forum -- and only that forum -- does state that postings "are not to be replied to by others." Perhaps Brian, Gary or one of the other old-timers can explain why this request was initially made.

That said, that request has been widely ignored, and some people who started threads there have said they welcome comments. If you have a question about whether your reply to a posting on the OCF Cancer Blogs forum would be welcome, you can always e-mail or send a private message to the thread's originator.

On all other forums, post away!!

-- Leslie

Got it-I thought it would be wierd if we couldn't respond. Thanks!!!!

HELLO EVERYONE

LET ME CLEAR THIS UP PLEASE.

This website is called the "Oral Cancer Foundation".

Where you read about and write to people is called the [OCF Survivor/Patient Forum]

WHEN YOU GET TO THIS PAGE, THE FIRST PAGE AFTER YOU TYPE IN YOUR NAME AND PASSWORD AND HIT ENTER, THERE ARE 16 (SIXTEEN) DIFFERENT FORUMS.

YOU ARE ALSO BROUGHT TO THIS PAGE WHEN YOU CLICK ON "FORUM HOME" AT THE TOP CENTER ON EACH PAGE.

THIS IS WHAT THE PAGE LOOKS LIKE:

ARCHIVE/MESSAGES....DONATIONS/GIFTS/....HELP SUPPORT OCF

Forums

General Board
Introduce Yourself
Symptoms and Diagnosis
Survivor Stories
Coping/Anger and Fear
Medications, Treatment, Procedures
Currently in Treatment
After Treatment Issues
Caregiver/Co-survivor Forum
Insurance and Financial Forum
Adjunctive Therapy
Activism

OCF CANCER BLOG DO NOT POST A RESPONSE HERE!!! USE E-MAIL OR A PM ONLY!

Friends
Getting through it project
OCF Administration Forum

I Hope All Understand Now! Under each forum there are directions. The "OCF Cancer Blogs" is the only one. I repeat, the only one that asks that you not respond to the post. IF YOU MUST, USE E-MAIL OR A PRIVATE MESSAGE (PM)

PLEASE READ THE DIRECTIONS UNDER EACH FORUM

General Board
You can talk about anything here that doesn't fall into one of the forum topics below. Please check the other forums as an appropriate place to post before posting something here.


Introduce yourself
Introduce yourself to the forum, or offer help. This forum is the ideal starting place for a new poster to the board.

Symptoms and Diagnosis
If you have questions about symptoms or your diagnosis, this is the forum to start in

Survivor Stories
Survivor Stories. Talk about your life after the big "C"

Coping / Anger and Fear
Discuss the emotional part of dealing with OC as a patient or a family member

Medications, Treatment, Procedures
Discuss medications, treatment, procedures here. Want to know how others have handled medications and treatments as well as their side effects? This is the place

Currently in Treatment
Post here if you are currently in treatment and have questions or wish to update the members on your progress.

After Treatment Issues
This forum is for discussion of those problems and issues that linger after treatment, or are the long term effects of treatment itself


Caregiver / Co-Survivor Forum
Family members and caretakers can discuss their own personal issues and find support here. Caretakers have their own fears and problems that are often better discussed with someone other than the patient.

Insurance and Financial Forum
Disscuss third party payment of cancer care, and financial issues here

Adjunctive Therapy
Here the discussiuon of therapies outside the realm of curative, conventional medicine are discussed. Note: these are not ALTERNATVE therapies. No linking to other sites from this forum please
Friends
NOT neccessarily cancer related.
People come to the OCF forums and as a by-product of helping each other develop friendships. This forum is a place to discuss personal topics and stay in contact with each other about subjects that may be far from cancer. Posts older than 60 days are automatically deleted to conserve OCF's server space. OCF reserves the right to delete topics which might be offensive or insensitive to others.
Activism
What are the issues related to OC? Discuss ways of changing things, and getting the word out. Discuss oral cancer events and planning for them here as well.

OCF Cancer Blogs
Here you can keep a running narrative of your CANCER experiences, frustrations, thoughts, fears, successes and failures and more. Each of these is a running narrative, expressing the thoughts of a member, that are not to be replied to by others. This is an eay way to keep multiple family members and friends updated as you go through treatment if you like. Just give them the forum url address and they can check up on you here.

Friends
NOT neccessarily cancer related.
People come to the OCF forums and as a by-product of helping each other develop friendships. This forum is a place to discuss personal topics and stay in contact with each other about subjects that may be far from cancer. Posts older than 60 days are automatically deleted to conserve OCF's server space. OCF reserves the right to delete topics which might be offensive or insensitive to others.

OCF Administration Forum
This forum is a private forum for use by OCF administrators, advisory board, and directors only, Password required for use.