| | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | Well David if you havent by now by all my post realized that I can always "take a joke" lol your not paying attention....I will stop by publix and pick some up tomorrow after treatment! Might have to wait till after my round of golf though....lol, tee time 11:15am! Better take advantage while I still can! Oh by the way, wife loved the lasagne and garlic bread I made...me on the other hand, tasted like metal wrapped in shit! But I ate it! lol..have a good night!
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | If your getting a metallic taste, try eating with plastic utensils.
Hope you texted them back that 'if they hadn't canned you, they wouldn't be having the problem.' Enjoy the golf. Hope you get lucky and play the whole six weeks.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | Eileen you serious about the plastic utensils? lol, I eat with my hands and everything still tastes like shit....David leave that comment alone. lmao! Shot a 93 and it was HOOOOOOOTTTTTT! I think I will be taking the RO up on the percs on friday...its starting to get pretty damn sore now!
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | Oh, my RO's nurse told me to get a humidifier....Should I get a cold mist or warm mist? Does it even matter or is it a waste of money? Let me know
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | I like the cold mist, particularly in the summer months. It does help, but isn't going to change your world completely.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | A stubborn ass Italian unemployed Volvo car salesman who eats with his hands.....nope I won't touch that.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 113 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 113 | lol, I am an unemployed finance manager for Nissan....Dammit David get it together havent sold volvos for 2 years! So David you going to do my taxes this year for free or what?
30 yr old M non-smoker (stuborn ass italian)
SCC left side Tongue 2/17/09, Partial Gloss. 2/25/09
Left ND 5/20/09 10 nodes, 1 pos (1.7cm w/xtra cap spread)
Finished Rads IMRT X 33 8/18/09 (70gy)No PEG, No Chemo
"On the long road to recovery 1 step at a time"
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Wow I can't beleive your heartless boss! I think here you could sue under the disabilty discimination act. Sick note who sits next to me at work and had 85 days sick last year (on top of her 25 days annual leave), because she has endomitriosis, is covered. She thinks I am her friend so showed me the letter and giggled. I was so angry, my company are cutting down the accountancy staff and they are too scared to touch her in case she sues. Who's most junior after that? ME! My boss said he would defend me if redundancies started so I should be relatively ok.
It's unfair how some people can get away with so much.
Hope you can get some deal in writing. listen to you solicitor.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I do offer free tax advice each year on this site and I also answer tax questions by PM's when their less general in nature. I also made the offer this year to do anyone's taxes for free when they made a donation to the OFC. I don't remember any minimum being required, just a donation. So the offer still stands. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=92614#Post92614Sorry about the F & I vs Salesman comment. Please allow me to correct myself: A stubborn ass Italian unemployed Volvo F & I Manager and former car salesman who eats with his hands.....nope I won't touch that. Better?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2009 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2009 Posts: 33 | I was under the impression that during chemo-rad tx I would be able to claim short-term disability due to fatigue, throat, etc.
However, I'm just finding out right now that the rad DR treating me put "Not applicable" under "date patient was totally disabled unable to work".
I'm a programmer. I can't concentrate enough to be able to program.
Doesn't being in treatment qualify as short-term disability?
Joel
Age 49, HPV 16+ SCC, T1N2bM0, Stage IV R Tonsil, 2 nodes, nonsmoker, lite drinker, 100 mile/wk biker, workout, play hockey, Tx:10/26--12/15/09, IMRT x35 70Gy, no surgery, Cis 1st rnd til some tinnitus loss after day 2, carbo next 3 wks, Peg in 3rd wk;still ate some solids 6th wk. 2012/05 Still Clean
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