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#10825 05-28-2007 02:21 PM | Joined: Apr 2007 Posts: 20 Member | OP Member Joined: Apr 2007 Posts: 20 | so far so good. My sweetheart is one strong man, physically and emotionally. One chemo and 12 IMRT's down and he's doing GREAT. Using his PEG well and dealing with not tolerating amiphostine and loosing his sense of taste. It's ME that's freaked and blue. I worry about laying my trip on him. Maybe I'm being hypervigilant and even (worse) thin skinned, but I just lost one close friend to cancer two weeks prior to my sweethearts diagnosis. Where do I lay this and how to you caregivers get juiced up without draining it out of your cancer fighter?
~thalia
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#10826 05-28-2007 04:00 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Dear Thalia, Please read this response keeping in mind that a 66 yr. old retired English teacher is responding to you  "Freaked and blue" is a very normal response to your situation. "Scared, worried and depressed" are other descriptions that come to mind. As to "laying your trip on him"-telling someone you love that you care and want to whatever you can to be there for him is good, and expressing your fear and pain for his situation is honest. How does a caregiver get "juiced up"? Well, in my experience, it comes from within. How strong are you? How committed are you? How deep can you dig to get both of you through this? AND please don't forget the people here who will help you along the way. It takes a team to fight this disease. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#10827 05-28-2007 04:28 PM | Joined: Apr 2007 Posts: 20 Member | OP Member Joined: Apr 2007 Posts: 20 | sorry...I'm just too raw and rough to be very pristine in my expression. What I mean by juice is probably fortitude. You ask me how strong and commited I am? Probably more commited than strong and terrified as a result. You see...I am truly clinicaly depressed from my recent loss and yet the only thing that really keeps me here is my love and care for my loved ones. Children, lover, friends....I have lost all sense of what I need and I cling to what I can give as my only venue for meaning. I am lost lost lost but still, somehow, shining in love
~thalia
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#10828 05-29-2007 09:01 AM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Mar 2007 Posts: 179 | Hi, hang in there.if your area has a support group go to it. I went my myself. 'cause my husband wanted nothing to do with it. It was the best thing I did for myself. Also this forum is a blessing.When you think you are alone you find out others went before you. What a great gift of fortitude this board is. Looks like my husband has the same treatment schedule as yours. We are just about to start our 3/ 5FU Its a long struggle and a long hard journey but we get there hour by hour. Please know you are not alone. Keeping you in our prayers. Lady J
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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#10829 05-29-2007 03:28 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Thalia, being committed is GOOD,and stenght is something we all dig for during a time like this. What are you doing to cope with your clinical depression? You must find some ways to take care of yourself while you are taking care of others.Amy in the Oz
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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