| Joined: Nov 2009 Posts: 7 Member | OP Member Joined: Nov 2009 Posts: 7 | 2nd day of treatment today, can't complain. Not going to complain as things could be worse. time is going to fly by like a kite from here on out.
Question: I am feeling some sharp pains come and go in the radiation site. Is this common?
age 29,salivary gland cancer, smoker, non drinker, weekly cisplatin and IMRT daily X 34. Just started treatments.
3/2010 all done with treatments and 3 great scans. life is back to normal pretty much.
| | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Nov 2009 Posts: 212 | Maya, I did not experience and pain during the treatment other that when they stuck the stinking mask on my head and latched me down to the table.
You are on your way for a tough treatment. Keep us informed, ask questions, Lots of support here
do you have a Peg or Port?
Steve
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Maya, I just had my third day of treatment. I do have a place on the right side that is sore to the touch. We will walk through this together.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Nov 2009 Posts: 7 Member | OP Member Joined: Nov 2009 Posts: 7 | Hi Steve,
No peg No port. If i stay ready i won't have to get ready. I really don't like being latched to the table like that either. 32 more treatments to go.
age 29,salivary gland cancer, smoker, non drinker, weekly cisplatin and IMRT daily X 34. Just started treatments.
3/2010 all done with treatments and 3 great scans. life is back to normal pretty much.
| | | | Joined: Nov 2009 Posts: 7 Member | OP Member Joined: Nov 2009 Posts: 7 | Hi angelia,
your one treatment ahead of me. yes we will get thru this together. I'm worried about Friday as i will have chemo and radiation all in one day. Hope this goes well.
age 29,salivary gland cancer, smoker, non drinker, weekly cisplatin and IMRT daily X 34. Just started treatments.
3/2010 all done with treatments and 3 great scans. life is back to normal pretty much.
| | | | Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2009 Posts: 148 Likes: 1 | Hi Maya, Each day brings you closer to a full recovery! In the begining of my ordeal, nothing ment anything to me. I was told to come in to get fitted for "The Mask". I had no idea the terror I was in for! My heart was already beating too fast when I first saw the room for the radiation. Then when the warm mold was placed on my face & all those hands were pressing down at once...my heart was pounding out of my chest! How I wished I was hooked up to an ekg @ that time, the readings would have been off the charts! Anyway...everyday a 1/2 hour before my tx I took a half pill of Adavan. Loved that pill! Ask for it, it helps w/the anxiety (of the whole mask, bolted to the table & rad.) I also had a calender & loved crossing off the completed week of TX. Your soo young to have to go through this, I will pray for you honey. Eat everything your heart desires now, keep a journal (if you can) Most of all..keep your positive outlook! Every am before my TX, my hair was done & full makeup! My mask still has lipstick on it! I always walked in smiling! Best Wishes, Dianne MH
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2009 Posts: 148 Likes: 1 | Maya, Me again, don't worry about chemo w/rad. on Fri, I had the same. On the Sun however I felt "punk" I wasn't nauseous, just felt rotton. It was the only day the chemo got me down. 18 days later I had some hair loss on only the back of my head above my neck. It all grew back, so don't freak out if this happens to you! Any questions? You can ask my anything! Dianne
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Maya, I had my chemo/rads on Monday. I took the anti-nausea medicine they gave me round the clock until Yesterday morning and did not have too much nausea. I took it at the first hint of it. You will do fine. It seems to be getting easier as it goes. I know the side-effect ofs th radiation will soon be here, but i am enjoying every moment of everyday while I still feel well. I do get really tired easily and have to stop and take a nap sometimes.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Nov 2009 Posts: 7 Member | OP Member Joined: Nov 2009 Posts: 7 | hi ladies it's been a while since i been here but im happy to report that althougj things are pretty much terrible at this time i only have ten more radiation treatments to go so its countdown time. i am praying that tests afterwards are good because i couldnt do this all over again.
age 29,salivary gland cancer, smoker, non drinker, weekly cisplatin and IMRT daily X 34. Just started treatments.
3/2010 all done with treatments and 3 great scans. life is back to normal pretty much.
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | YEAH,Only 10 more days. You can do it!!! I am right behind you with 15 more days to go. We are going to get through this together.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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