Hello Folks,I was walking today think about the past couple of months. I thought I would share my experience
I had a hard treatment, My neck looked like raw meat, I lost my voice after about 20 treatments and I was 100% dependent on the PEG. I was very lucky to have an incredible support group including my wife and kids. I had lots of pain and was taking morphine for several months.

After several weeks post TX things did get better. I remember my first drink of water, after about 3 weeks my voice came back, though I sounded like a trol. at 5 weeks post I was off the Morphine and fentanl patches.

Over the last 10 weeks I have tried to walk almost every day, I am very slow and weak but still get to put one foot in front of the other. It is tough when old men in walkers pass me!

About a month ago I started to have fluid come through my nose when I drank fluid, I went to a speach therapist and have that mostly straightened out. They said it was very common for our cancer

The best news is now I am eating like a horse! I do take a sip of ensure with every bite, greese up the throat and I am finally gaining some weight.I also drink Muscle Milk, water is still iffy on my nose. I lost 35 pounds and have bird legs! With this new eating craze I do not use my Peg anymore so I hope to get it out shortly.

So other than the dry mouth and weakness I am OK. I know from reading all the great info on this site that it takes a long time to recover so I am just taking it day by day!

Steve

Steve,

You're on the right road. Congrats.

Hi Steve, So glad to hear how well you are doing! Have you been able to enjoy any wine yet? In the past all wines have been to "bittie", but over Thanksgiving a tried a new wine. It comes in a blue bottle & its called "Relax" It is very smooth (white wine) Enjoy your walks in beautiful, sunny CA ! Here in NY we may get our 1st snow fall Wed. My son who lives in Sacramento loves to tell me how great the weather there is! Stay strong!! Dianne

No wine or beer or soda, drives my mouth carzy! I will look for relax although my favorite beverage (wine) might be a thing of the past

Steve

It might take awhile but bet the wine will be in your future.

My husband was not a wine person but he enjoys it now.

Steve,
It took me nearly 1.5 years to be able to tolerate a glass of wine, and now I actually enjoy it again (in moderation). Anything with heavy carbonation is still iffy ie. sodas and beer, although a Guinness was ok fairly early on.

M

Try a Chablis or Pinot Griglio. An ice cube might if help if still too stong. I could do whites and beer before I could do most sodas even flat but then I was never really a soda drinker. The tannins in the reds bothered my tongue so it was a couple of years before I could drink reds. I imagine wine will be in your future.

Take care,
Eileen

Great that you are on the "other side" and the side effects will gradually improve. I saw a real lift about 10 months out. Think about making the switch as there's nothing like an ice cold beer going down a treated throat. Best of luck for a rapid recovery.