| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Granted I perhaps had the "baby" version of SCC and I didn't have any surgery to speak of but I am able to eat the hottest of hot sauces without any abnormal sensations.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | At least in my case surgery did not cause much of a change, it clearly was the radiation. Beside individual reactions/and recovery I would expect that spicy food tolerance and taste recovery also depends where exactly you are irradiated.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Sep 2009 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 60 | The cause of my intollerance to some foods (spicy and acidic) is clearly the radiation. The edge of my tongue looked like overcooked bacon by the time I was done. It is that edge that causes the most pain.
Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes
| | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | Bill, I am 11 weeks out and I sweat on many foods, I think it is because it is so much work. It is funny though, I live in Southern CA and went to a great mexican hole in the wall the othe day. I had Chile colarado, I could not taste the hot but I did sweat about 5 times as usual, my hair was wet when I left!
It was pretty good!!
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2009 Posts: 27 | Just finished with a visit to my RO. She stated that when eating spicey food, stomach sends message to glands to start secreting more saliva. Saliva glands still not working so body secrets more sweat.
Age 63, occasional drinker, smoked for 40 years
Base of tongue, stage 4,T-2,N2B
Cisplatin 1xweek
30 RT ended 6/25
PEG removed 8/23
PET Scan shows scaring but believed no tumors 9/25
| | | | | Joined: Dec 2009 Posts: 4 Member | | Member
Joined: Dec 2009 Posts: 4 | I wish I could still eat spicy foods I used to be able to eat red savina chillies before this crap started now one eighth of a chili burns like hell
diagnosed in may this year with a T2 NO larangeal cancer had 38 radio therapy sessions over 5 weeks no chemo recovering from side effects
| | | | | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I wish I could eat spicy foods, it has been 2.5 years since my treatment. Ketchup even burns and I miss pepper on everything. If I do mexican, the sauces on the side and ton of sour cream with my chips. It is the only way i can eat salsa, dip the chip in the salsa shake off the sauce and dunk in the sour cream.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
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