| | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | Hi, I am 9 weeks port TX, doing fair. Still greatly fatigued. My throat still hurts when I swallow. Do may of you experience the same? Also when I eat, and I am eating ok, each bite is "Bird" sized as opposed to my old self of wolffing food down. Normal?
Thanks, Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: Sep 2009 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 60 | I am now 5 and a half months out. There is still a bit of pain. There is always some dryness in the back of my throat that makes it a bit tight feeling. I would say for me the actual mouth pain was gone around 4 1/2 to 5 months.
At 9 weeks I was still forcing every bite down. I don't know if I will ever get back to wolfing. While my saliva has come back about 30%, it still makes a difference in how food is chewed and swallowed.
Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes
| | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | I am six months post treatment and still use very small bites and prefer to eat items with high moisture content. I think you may have to suppress the wolf in yourself for a while.  In regards to the throat hurting. Mine let up at about 8 weeks - and was definately linked to my increase in water intake. So drink lots of water.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Carmen,
I was 15 months post Tx before I really felt my saliva and taste had improved enough to satisfy me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2009 Posts: 4 Member | | Member
Joined: Dec 2009 Posts: 4 | still hurting after 4 months throat is dry as hell and still sound like a frog
I wish it would stop so I can get back to normal
diagnosed in may this year with a T2 NO larangeal cancer had 38 radio therapy sessions over 5 weeks no chemo recovering from side effects
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | 4 months is still very early in a typical recovery time frame so keep your mouth lubricated and keep a bottle of water with you constantly and give your body much more time and it will recover nicely.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | Constant hydration is the secret to helping the sore throat. I know it is a vicous circle - cuz it hurts to swollow the water. As far as that Frog that is residing in your throat - mine is still very raspy almost 7 months post treatment. I choose to think of it as a sexy voice. LOL
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | thanks everyone. I am trying to driks lots of fluid. The thicker stuff goes down well, ensure muscel milk. Watter is still a challange. I can only take sips, but a bunch of sops equals an ounce and over the day I can drink a ok amount.
Yes David, I am now in the legion of folks who have a water bottle around.
I also wanted to give you all a general BIG THANK YOU
This is a great forum and I look forward to reading, getting advice and giving it.
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Steve, yeah, this IS a great forum and I've learned a tremendous amount in the last 5 months here. All I can do is second David 1's comments as well as the others'. I'm 9 months post surgery and 6 post RT and it still hurts to swallow, I take tiny bites with plenty of water, etc., etc. We'll both get better!
David the Second
Last edited by David2; 12-03-2009 11:45 AM.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | It was 9 to 11 months post tx that I felt a real "lift". Today, all is good but not like before and will never be when it comes to eating and swallowing certain foods. Can definitely live with that!
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
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