I have question about this PEG tube. I notice that when I take the cap off the clean it out all kinds of fluid comes gushing out of it. SOmetimes it is clear and sometimes it is not. Is that normal? And how do I keep the fluid form coming out? Do I just need to use the syringe and push it back into the tube? Thanks.

Angelia,

As long as the tube is headed downward (which is most of the time) some of your stomach contents will be in there. And when you take the cap off, you need to hold the end of the tube high or you will lose the contents...very normal. Make sure you don't sneeze or bear down while the cap is off....explosion! You can definitely clean it by pouring water into a syringe and hold it high enough to have it pour thru.

Have you finally gotten some instruction on using and cleaning your tube?? If not, your insurance should cover a home health nurse to come at least once and give you the lowdown. After that, your should also be able to receive supplies (gauze pads, supplement, tape) from them delivered to your door. Your MO can give you a script for all this...ask the nurses to get this going.

Hope this finds you feeling less pain..it should subside over the next week. Bill used a lovely wide ace bandage (the soft kind, not the rubbery one) to hold his PEG in place...the tape got so irritating to his skin. They wash well and the velcro closing works nice as long as you make sure it doesn't touch your skin. You just tuck the tube under in a U shape and it it not noticable under your closthes.

Hope this helps,

Deb

Checking on you.

Lots of info and tips on here. Hoping the pain is less today.
Sneezing is probably not something you look forward to, remember that from abdominal surgery.

Margaret

Do not go into the weekend with your PEG hurting. Call your gastro and get into see him/her ASAP. My PEG hurt like heck when it was first put in and I just thought that was the way it was and suffered. At my one week follow up appointment the PA had a fit - the PEG was too tight. She told me I should have called after two days of pain. So call - Now! Good Luck - keep your chin up. You'll make it.

I called and they sent me for an X-Ray. he also told me that he did not want the bolster to be able to move, but my nutririonist said it needs to be able to move so I can clean under it. What the?? I am getting conflicting information and am not sure what to think. The Dr. that put my PORT in told me that it is normal to have pain and soreness after a PEG for a while. I am already sick of it. Anyway, they did not see anything on the x-ray and they do not know the cause of the pain. If it has not subsided by tomorrow I will call again and see if I can get in to have him take a look at it.

Wow Angelina...what a pain...literally. Hopefully you can see the doc who placed the PEG and tell him what your nutritionist said so they can clear things up for you. You're going to have enough to deal with.

Are you still teaching? I really hope not.....the last thing you need is that woman who made fun of your talking. I still don't like that happened to you:)

Just want you to know I'm thiking of you...xoxo

Good luck! I'll be thinking of you!

I am so sick of this stupid PEG. I just want to pull it out. I want to be able to see my kids Thanksgiving play today, but also do nto want to go into the weekend with the pain. I hate this.

Has the peg been loosened? Im sorry you are still in pain. I was given a wrap that went around my waist. It kept the peg in one place. It was about 8 inches wide and had velcro on it to make it adjustable. Ask your hospital or doc if they have such a thing, get some good pain meds too.

I have called three times today and no one has called me back. I even called the dr's personal cell number.