| | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Jim:
My thoughts and prayers are with you as yours has been with the many other folks through their journey. Stay strong and continue to practice everything you teach others here!
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | Thank you for posting Jim, you brought tears to my eyes knowing that you're posting is making me feel better.
I'm so glad you're surrounded by your family. My family made me strong.
Good Luck with selling your house.
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Thanks for posting Jim. I just want you to know that you are helping me with your strong attitude. You are so brave. You are in my prayers and know that you will beat this thing. You have such a positive attitude about it all. Thank you.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Sep 2009 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 60 | Jim
Your words here have helped me more than I can say. Be well my brother.
Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Jim,
I just signed on now and an update on you was the first thing I looked for. I'm sorry the news is so grim, but hopefully this surgery will leave you cancer free. What truly makes me mad is that your other doctors missed this despite all your complaints about pain and other problems.
You said you are also having a glossectomy. Will that be a total or partial? Or won't they know until they get in there?
If anyone can beat this, it is you. Hang in there Tiger! Your angels are watching. Sending good vibes your way.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2009 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 51 | Jim,
Sending positive healing energy your way. Can't wait to see your wise and humorous posts again!
Diane
Caregiver for Husband, Dana, age 52
DX 11/08, SCC right tonsil, Stage 3
RND, right tonsilectomy, Peg tube installed 12/08
Cisplatin X3, IMRT X35, last TX 3/09
CT scan 5/09 clear
PEG removed 8/27/09
1st PET scan clear 9/10/09
Minor surgery to repair PEG site 9/17/09
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Jim -
I've been away & was so sad to hear your most recent diagnosis. This sucks, big time. Still, you are taking control of your life, so I don't think this beast will ever beat you. Take care & good luck. Many prayers, hugs & good wishes.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | Jim, what horrible crappy news. I hope your surgery is successful, and recovery is manageable. Just tons and tons of good thoughts and wishes for you.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: Oct 2008 Posts: 247 Likes: 1 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 247 Likes: 1 | Jim, I feel like I've gotten to know you over the past few months through your posts.
I will certainly be thinking about you and hope to read updates about your progress.
Wishing you strength and a successful recovery. Lottie
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Jim,platu. I had a segmental mandibulectomy. I knew I was on here for something. Don't even worry. I was odd man out because I was one of few that my jawbone replacement/plastic surgery did not take. They thought it was disastrous and now I look not so awful bad and can eat and talk and still turn a couple heads(when they look at the other profile) HAHA. I thought my life was over and still I have a lot to cope with but I am working full time and
even though I had to learn to swallow again and chew differently,
I am doing it. I am the only one I know that jaw surgery and replacement with a bone from elsewhere did not take and look how
I am making it work out.
You are going to be fine and make me jealous because your reconstrution will work. Just ask Malka. I am the outsider here
and I am OK.
You always make it Jim. I love you because you are so strong-
you can be stronger than me!!!!!!!!!!
Take heart.
Love
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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