| | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | Jon, Good Luck. In your earlier post you had asked about what you would feel like at Christmas when you fininshed treatment. Everyone is different. But...........I would still plan on meeting with you friends at Christmas, eating will probably be out of the question but getting together with them would be good. For me personally - previous to my diagnosis we had planned for and paid for an extended vacation. We were to leave a week after my treatment ended. Having that to look forward to kept me going and gave me the incentive to keep pushing. It worked. I went on the vacation and it was the best thing I could have done.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Good luck,Jon -
You've done a lot to help yourself & I don't believe you're going up the river without the paddle.
Stay strong.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Jon,
Hoping all goes better than you expect. Worry about the unknow is awful.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Good luck to you, Jon. Hope all goes extremely well!
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 53 | Well I have endured the first week of Radiation I have been feeling very sick most of the time so they changed my nausea tables to stronger and much more expensive ones called Nasea 0.1 mg Antiemetic 5- HT3 Tablets, RAMOSETRONE 500 baht each here. but I just could not stand feeling sick all the time and I am now able to eat before I did not eat for three days the sight of food made me felt ;like pucking, and as for the Build up drinks I had one of those and was sick as a dog so now I hate them.
The other problem I am having is the extra large lymph node now and pushing against a nerve in my head and giving me horrendous head aches at night so I can sleep do I�m taking synthetic morphine for that and ARCOXIA plus TYKENOL with CODENE when I told the doctor I was taking 2 Tylenol ever 2 hours 24 hours a day he freaked saying it will kill your liver.
so 6 weeks to go.
They have now decided to not give me 15 of the chemo over 3 days X 2 weekly treatments.
As I need to work they will start next Wednesday with 5 per week for maybe 6 weeks not so many after effects I hope. has any one else had it this way.
So now I have to get all my strength up for Wednesday the first 4 hour treatment.
What are the after effects can any tell me of this lighter regime.
Thanks for any help. I was so worried about not eating or drinking for 3 days, Im glad I went to Sizzlers yesterday and had some soup and salade, with jelly and fruit, it broke the problem that I thought I was going to be sick and I was not.
Last edited by Teacher jon; 11-14-2009 10:07 PM.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Jon
did you have any chemo yet? Radiation generally does not cause nausea, at least not that early on. Be prepared for loosing taste, which sucks.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 53 | No I have had no chemo until this coming Wednesday, yes I was feeling nausea with radiation.
I am having a milder form of Chemo from this week, 5 ml instead of 15 mils each session, I hope the nausea is not strong.
Last edited by Teacher jon; 11-15-2009 02:11 AM.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Jon, I have been keeping up with your posts. I just have not posted anything. I am due to start treatment this week. I will be watching to see how that chemo treats you. I think I get my first does on Wednesday as well. I have my simulation on Tuesday.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Angelia,
Do not try to compare one person's side effects to yours. You will react as YOU WILL react. You may breeze thru or you may have the worst reaction of anyone or ANYWHERE in between. Just depends on YOU so lets calm down and see what happens. Oh BTW, Jon's reaction is not at all the typical one.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Jon...I wish you much luck and strength for the next coming weeks.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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