| Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2009 Posts: 27 | I am slightly over 3 mos post radiation and chemo and doing very well considering. I have gained back 15 lbs and have had feeding tube removed. Work out 3 days a week and have increased stamina and strength. All in all very lucky. However I am having a unique reaction to spicey food I have never had before and that is excessive sweating when eating Italian, Mexican or Chinese food. I could understand the burning in the mouth but this is after I have eaten, any thoughts? My tongue is still sensitive and on occasion throat seems a little sore, is that normal? Thanks in advance for the reponses.
Age 63, occasional drinker, smoked for 40 years Base of tongue, stage 4,T-2,N2B Cisplatin 1xweek 30 RT ended 6/25 PEG removed 8/23 PET Scan shows scaring but believed no tumors 9/25
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | My thought is Don't eat the spicy stuff for a while.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Oct 2009 Posts: 11 Member | Member Joined: Oct 2009 Posts: 11 | I would try to hold off on spicy and hard foods, but I totally understand the craving that I had and nervousness to being able to eat again.. to be able to be normal its just all very stressfull. I didn't hold off I would just eat everything or at least taste everything, everything tastes different or like nothing...I hurt myself with hard or sharp foods and ge t blisters from spicy foods...take it slow...
37/female dx:1/15/08 SSC patial glossectomy of tongue and 7 lyphm nodes removed...6 weeks of radiation...
| | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | My treatment ended in Aug. '08, and I still can't tolerate spicy food. I wouldn't even know if sweating afterward is normal or not!
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | Joined: Sep 2009 Posts: 60 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2009 Posts: 60 | I started sweating while eating spicy food about the time I turned 50. It was my only indicator if something would be hot to other people, but that was way before I had cancer. I have noticed several foods make me sweat now, but have not seen any pattern to it.
My worst reaction to peppers has been the side of my tongue, that the radiation burned off. That is slowly getting better, 5 months out.
And I say if you can tollerate it, eat the spicy stuff. We deserve some pleasure.
Flip _________________________________ Age: 54 SCC Tonsil + 3 nodes Radiation and Carboplatin Treatment 4/1 - 6/7/2009 No surgery, no PEG Never smoked Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years) CT 11/4/09 No sign of envolvement in Tonsil or nodes
| | | | Joined: Jun 2009 Posts: 13 Member | Member Joined: Jun 2009 Posts: 13 | I have been out of radiation treatment since 8/3/09 and do avoid spicy foods as they cause disconfort to my still sensitive mouth. Sweating from eating spicy food is not new to me, but much more pronounced since tx. My eating is challenged by reduced saliva, and the resulting advoidance of all bread is keeping my weight down, 25 lbs since beginning radiation tx and holding steady. Alcohol intake is also reduced. All in all, its a good thing. Bob
Bob, age 64, reformed smoker since 3/85, moderate alcohol, Right tonsil, 5/20/09 tonsillectomy, T2N0M0, IMRT started 6/17/09, ended 8/3/09, 33TX, no chemo, 11/6/09 & 7/21/11 PET/CT Scan clear
| | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | "OCF Down Under" Senior Member (100+ posts) Joined: May 2007 Posts: 132 | 12 months post radiation and I still can't eat anything spicy - even tomato sauce hurts (I think you guys call it ketchup) and forget chilli and any alcohol - no way it burns! I'm about to go through it all again so if I'm lucky I'll be back to yoghurt, eggs, milk and bland, bland, bland! (I do thank God for cheesecake and icecream, though).
Sue
55 y/o SCC LL Tongue 3/27/07 Part. mandibulectomy 9/2/07 Left ND 5/12/08 RT/Chemo Rec LL Tongue 07/09 Part gloss 8/5 & 8/25 Surg 10/28/09 re mets to R neck & L jaw RT & Chemo finished 12/22/09 PEG fitted 05/06/10 L buccal SCC 10/10 freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | Take it slow, all in good time you'll be able to eat spicy foods again..I still sweat when eating it though...The back of my head gets all wet!..LOL
But nothing like those night sweats I had when I had the cancer...OH boy..memories.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2006 Posts: 294 | It was over 2 years before I could even tolerate a jalapeno again so don't worry. Time will eventually be on your side.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | Bill, you can eat jalapenos..... you are the man! I still have to be careful what sort of sub I get at Quiznos. I still have this silly trophy somewhere from a jalopeno eating contest eons ago (4 in 4.9 s). Of course they did burn like hell later on.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Granted I perhaps had the "baby" version of SCC and I didn't have any surgery to speak of but I am able to eat the hottest of hot sauces without any abnormal sensations.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | At least in my case surgery did not cause much of a change, it clearly was the radiation. Beside individual reactions/and recovery I would expect that spicy food tolerance and taste recovery also depends where exactly you are irradiated.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Sep 2009 Posts: 60 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2009 Posts: 60 | The cause of my intollerance to some foods (spicy and acidic) is clearly the radiation. The edge of my tongue looked like overcooked bacon by the time I was done. It is that edge that causes the most pain.
Flip _________________________________ Age: 54 SCC Tonsil + 3 nodes Radiation and Carboplatin Treatment 4/1 - 6/7/2009 No surgery, no PEG Never smoked Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years) CT 11/4/09 No sign of envolvement in Tonsil or nodes
| | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Nov 2009 Posts: 212 | Bill, I am 11 weeks out and I sweat on many foods, I think it is because it is so much work. It is funny though, I live in Southern CA and went to a great mexican hole in the wall the othe day. I had Chile colarado, I could not taste the hot but I did sweat about 5 times as usual, my hair was wet when I left! It was pretty good!!
Steve
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | Joined: May 2009 Posts: 27 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: May 2009 Posts: 27 | Just finished with a visit to my RO. She stated that when eating spicey food, stomach sends message to glands to start secreting more saliva. Saliva glands still not working so body secrets more sweat.
Age 63, occasional drinker, smoked for 40 years Base of tongue, stage 4,T-2,N2B Cisplatin 1xweek 30 RT ended 6/25 PEG removed 8/23 PET Scan shows scaring but believed no tumors 9/25
| | | | Joined: Dec 2009 Posts: 4 Member | Member Joined: Dec 2009 Posts: 4 | I wish I could still eat spicy foods I used to be able to eat red savina chillies before this crap started now one eighth of a chili burns like hell
diagnosed in may this year with a T2 NO larangeal cancer had 38 radio therapy sessions over 5 weeks no chemo recovering from side effects
| | | | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2007 Posts: 60 Likes: 2 | I wish I could eat spicy foods, it has been 2.5 years since my treatment. Ketchup even burns and I miss pepper on everything. If I do mexican, the sauces on the side and ton of sour cream with my chips. It is the only way i can eat salsa, dip the chip in the salsa shake off the sauce and dunk in the sour cream.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin TPN feeding for 5 months during treatment and after. Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
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