Previous Thread
Next Thread
Print Thread
#106673 11-08-2009 08:00 PM
Joined: Mar 2008
Posts: 67
Frank W Offline OP
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Mar 2008
Posts: 67
Hello all,

I have not posted in a while. Hopefully everyone is well.

I have a question about thryroid medication. My doctor prescribed 25 mcg of Levoxyl about 2 months ago and my insurance company provided the generic Levothyroxine. Next RX, the mail order pharmacy sent me a letter saying they are going to provide another generic at the next refill.

My concern is that I have not stabilized on a final dosage. I get a blood test this week and I believe the doctor will increase my dosage. Hopefully an increased dosage of thyroid medication will eliminate the drowsiness I seem to be experiencing. Does anyone have experience with switching between generics? Should I be concerned about this? Is it important that I be referred to an Endocrinologist or is my Primary Care Doctor enough to get me stabilized on this medication? Finally, should I just do the tests and let the system work?

I know that I can come here and get straight and sound advice.

Thanks,


Frank

SCC Right Tonsil Dx 2/25/2008 at age 43
T1N2B M0,Stage IVa
8mm primary removed 3/5/08
4cm lymph node removed 2/22/08
2 additional sub cm nodes
Tx at Stanford: 30 x IMRT, 2 x Cisplatin,
Started radiation 3/27/08, Completed 5/7/08
p16+, HPV 16+
2 Year Post-TX PET CT 5/10 - CLEAR
Frank W #106674 11-08-2009 08:31 PM
Joined: Nov 2007
Posts: 681
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2007
Posts: 681
Ask your primary Dr. I had been on Synthroid for decades before I went to a generic. My Dr. has me get blood work every few months and sometimes adjusts the dosage. It takes a while before a change is effective. The doctor can say no generic. Thyroid medication is one of the less expensive so if your doctor finds a specific one better for you he can write a letter of medical necessity so that your insurance will cover it.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Malka #106677 11-08-2009 08:59 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
My thyroid hormone levels vary over the years. So testing is an on going process, and nothing is written in concrete for the rest of your life. I have always been on the generic, and have never had any issues using it. I would get the test, and make whatever adjustments are necessary.

If it is only being tired that is your issue (you are able to stay warm and maintain your body temperature) I would also get a sleep study done. A very high percentage of those treated for head and neck cancers have undiagnosed sleep apnea, I was one of them. It was waking me up 20+ times an hour if you can believe that. I was tired mid afternoon unlike anything that I had ever experienced. Ingrid joked that I was just becoming like Barkley, our old dog that sleeps his afternoons away, and that chronologically (dog years considered) we were about the same age. I am still struggling with controlling my apnea, and it is still a major problem.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
I too take synthroid and get tested at least every 6 months. Do you know your baseline TSH level prior to radiation? If so, you should attempt to get as close to it as possible. There is a very wide range of 'normal' for TSH levels and my doctor pays no attention as long as it is within that wide range. I ask for the reports my self and if I am teetering away from MY normal 2.5, I have the dosage adjusted. If you see your primary on a regular basis, he should be able to handle this.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5