jon, I had rads and chemo and I would make food out of whatever sounded eatable after it would be put thru my blender. Mashed potatoes and gravy didn't need the blender , but things like stew did , same way with soups and beans. Put this over bread with a lot of butter on the bread and go for it.It's time to start doing and quit talking about it. It sounds like you need someone behind your behind and to start giving you some boots in the butt so you at least try some food.I'll tell you that the morer weight you are going to lose, the weaker you will be.. Been there--- done that.

Jon,
What a relief to know that you have found a way to go forward with your treatment. Don't worry now about food. You have received many good suggestions. The first place to start is to ask your medical team what resources are available. There is probably a recommended nutrition plan. Since it is a teaching facility there should be help available from a dietician or nutritionist on staff. If the other hospital caters to such a wealthy clientel there must be locally available nutritional supplements.
Best of luck,
Malka

Jon:
I lost my hair, but not from the chemo/radiation. I lost is from the induction therapy Cisplatin/5-FU/Dextera. I'm not sure which drug was responsible.
Sandyst

Ok wonderful guys,

Yes may be I do need a kick, but its all new to me and I'm alone trying to worry about how do I find the money, knowing time is running out and no time to start up, in the UK. so of course I'm stressed out, at least I have a starting date, I'm just hoping the money side will sort its self out, as you say I am going to start and knowing I have not got all the money hoping for a mirical, but if I can keep my job, this is a key to my income continuing, then Ill be in good funds, earl;y next year, so hopefully it will all work out. but cant wait till then.......

Can any of you give me more suggestions, for a dietary foods, I can eat, what do I need to eat, is it protean or calories or what.

Ill have to get a good blender, trouble is I have been told to get my teeth sorted, so that's more money, as I have 3 teeth she says, that need to come out, I think.

Thanks for all your help, do you really think ill be able to work, how did you get on with flem and dry tongue, any tips on that, when you had Chemo, was you very sick, how long did that last. wow so much to know, as I get near to Poison day as dave calls it.

You must remember I'm in Thailand and they do things basic here, in the Government Hospital, so Nutrition is not a big thing. so i have to get advise as much as possible.

I also did not get the PEG and in some ways I am glad and in others it certainly could have helped. I survived on the VHC but I know my doctors were pushing some hospital issued supplement that looked and smelled worse so I just stuck with the VHC. My point is they must have something that they give to eating challenged patients over there. ASK

Jon,

I have been following your situation and you have received excellent advice from everyone on the forum. I believe I read where you needed to have some teeth removed. If so, this needs to be done BEFORE the radiation begins so that your mouth has time to heal. I was in that situation and had to delay my treatment for about 2 to 3 weeks. I wish you the best.

Jon, I was told I woulld lose muy hair , but still have it all. I would trade hair anyday for 1 more day of life. Why worry about it. If it happens. smile and enjoy life without it.

Jon,

I had Cisplatin which doesn't cause loss of hair but where the radiation exits on the back of your neck will but it will come back in time. I also loss all of my whiskers and only the ones above my chin line grew back.

Jon, In a lot of ways your are in the same situation as I am. Alone in a new and different world, with many thoughts going thru your kind and no one close enough to discuss them. I really feel your pains and worrys. But you can survive abd go on. Just keep the positive thoughts and put the negative ones on the back burner. It would be nice to have someone to sit with you drinking a cup of coffee and the 2 of you making decisions as to what would be the best treatments and then comparing notes after the treatments were given. This is a rough disease and we need soemone to that is close enough to keep things on a personal one to one . You can handle it as I do, but it gets to be a very lonely feeling at times. This is a morning when I could use soemone to sit and talk with, but like you, I have noone. So I get busy and make the day pass without any advice but turn to the forums with help from our friends here who are so wise and understanding. These people are our sounding boards and friends. Jim

Well the day is near for the start of the treatment, now saturday 31st October. I'm so glad it has been brought forward as my lymph node is throbbing nightly now and I cant sleep well if i lay on it, I take tyronol nightly to stop the throbbing, I hope its not an ominous sign, that it is swelling weekly now and is 6cm.

I start on saturday with the making of the Mask, after that I dont know, I think I was told a week later they start the first Chemo in hospital for a week to monitor it, to me its like jumping from a cliff on a bungy and hope some time in a few months time ill be catapulted back up with a srunken lymph node and no signs of the base of the tongue cancer.....so who knows if that will Zonk me out to much, but it is of the utmost Importance I work through this its the key to me staying here and continuing the treatment. to late to go to the UK.

When do you think i will need to start eating liquid food or have mouth dry gel ready and some thing for the flem you said.

can you tell me the week by week plan i should take into consideration. how much food a day and water do I take in.

than you for any up dates you can give me and if you think I can continue with out a PEG PORT let me know if is it an individual thing.

Can you tell me as the treatment will now finish the week before christmas, will I be in any state to join friends for christmas dinner or will I be to sick for that.