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#105818 10-26-2009 08:29 AM
Joined: Sep 2009
Posts: 31
Contributing Member (25+ posts)
Contributing Member (25+ posts)

Joined: Sep 2009
Posts: 31
Hi guys

I had my mask made on Thursday which is another hurdle over with! Why cant the hospitals be more helpful when they send you the appointment letter like, dont bother washing your hair, wearing makeup & wear a top that you can pull down over your shoulders would help! I go back on the 11th Nov for further xrays to compare to my ct scan so the dr can decide what my prescription is going to be. Despite the surgery it now feels like reality has hit. Not sure if Im tired because I have ACC, or because I know I have ACC or because Im waiting for treatment!! I praise my hubby for putting up with me & my moodies!


Surgery to remove tumour from on top of saliva gland 3rd August 09. Biopsy revealed adinoid cystic carcanoma. Further surgery 28th September 09 to remove saliva gland, nerve to top lip (buccal branch) & scar tissue.
Radiotherapy finished 30 Dec 2009 IXA x 33 (60gy).
Joined: Nov 2006
Posts: 93
Supporting Member (50+ posts)
Supporting Member (50+ posts)

Joined: Nov 2006
Posts: 93
Moodies can be a good thing........ sometimes my *itch mood really gets things done.

Margaret


caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
Joined: Aug 2009
Posts: 90
Supporting Member (50+ posts)
Supporting Member (50+ posts)

Joined: Aug 2009
Posts: 90
you're entitled to be moody


caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09

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