| Joined: Sep 2009 Posts: 60 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2009 Posts: 60 |
Flip _________________________________ Age: 54 SCC Tonsil + 3 nodes Radiation and Carboplatin Treatment 4/1 - 6/7/2009 No surgery, no PEG Never smoked Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years) CT 11/4/09 No sign of envolvement in Tonsil or nodes
| | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Sep 2009 Posts: 53 | Hi Guys, I have been away for a week, so many thanks for all your responses, I have taken them all on board and will be going for my first Major meeting with the Hospital team, that will be looking after me and see where we go from here, tomorrow, I dont think or at least I hopeIi'm not having anything taken out, but for some strange reason I'm sure I heard him say ill be in hospital for a week, I have no idea till tomorrow, why though.
Ill ask all the questions you have put up for me and I hope it all works out that I can continue to work and I get better, because if I can't work and I loose my job. Ill be out the country fast, to no mans land, as I have no home in the UK and they do not give free National health service if you have been a way more that 3 months,
One thing I would like to know is it a big problem, that the Neck node has massed to twice is size and is egg size now. I only hope that they can still fight back the cancer.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Lets see what your team says tomorrow.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Sep 2009 Posts: 53 | Unfortunately I get one step forward and two back living here, what I thought was the total package for my treatment and my brother has kindly sent the balance of the treatment money all he has, it turns out now, that was only for the first part of the treatment, The PET-CT and now they want to know where the balance of the money is coming from, before they start the treatment, I said we will have to first see what BUPA will pay, the very minimal, judging by the previous amount they offered, for the PET I expect, then we can proceed.
So now I need the money for a 5 day stay in hospital for Chemo, as the lymph node has doubled in a month its so fast growing. so they would have to monitor the Chemo in hospital for any side affects as this needs drastic Chemo first for a week.
Then IMRT Radiation therapy, combined with chemo, with the PET scan to evaluate the extent of the cancer now, with IMRT treatment planning.
So as you see, I am now very worried, because he also added if the treatment does not start soon, it could get passed the stage where it is treatable, at the moment he says, he is still able to kill the cancer cells in my body.
So if I cant get the balance, I'm a dead man, as others have told me, while your waiting to be treated in the UK you die, if you have not lived there for a few years, as I have not, the funny thing is as from january, I have enough money monthly coming into pay off any bill, but no one can borrow money here. if I wait that long, he said with the speed of the cancer, Id be a dead man waiting.
So just waiting to see my fate, like a man in the death cell, quite frightening really. so this is a new one fo you guys, not that any one can help with this sort of problem, it sure feels good to air it.
By the way any one know of a charitable trust, who would lend me a few thousand to save my life, i could pay it back quick, no one I know here have any spare money lol
I know I'm deaming or is it some sort of a night mare, I;m not waking up from, hopfully it will work out some how, time will tell, thanks for listening any way, sorry I'm a bit dizzy with it all at the moment, Please forgive me as you know when it hits you, its all a very strange terrifying feeling. with being alone now also, its all a bit hard to take in.
Last edited by Teacher jon; 10-20-2009 04:33 AM.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I'm sorry for you delimnia, if you were in Florida I could help in getting you financial assistance. Have you taken your story to your employers? How about local churches or charities?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Sep 2009 Posts: 53 | No my school are only workers, they are not the charitable types here, my be some place you can go but I dont know of any here, sorry to say, thanks for your kind understanding, I was thinking it was very bad of me to mention it, just makes me feel better, I can tell my family here, all your problems, not that you can do much, but give love and understanding.
Thank you for that I do need it at this time.
Last edited by Teacher jon; 10-20-2009 07:26 AM.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Contact the American Cancer Society. http://www.cancer.org. I think they could help you find resources. No one should have to forgo the treatment they need due to finances
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Jon, Is there some social service program at the hospital that can help you around this problem? How much additional money do you need? You indicated it was a few thousand. I can't imagine that amount covering 5 days in the hospital even in Thailand.
Does the doctor know you do not have the money or any way to get it? You need to get treatment started right away or they won't be able to treat you as you said. Isn't there anyone at the hospital that help you through this bureaucratic mess?
I assume paying this back in January means you must keep your job and you are already going to be out 5 days at the beginning treatment. It's going to be real rough to be out only one more day.
I pray you find a way out of this problem real soon. Don't they do any charity in Thailand if you promise to try to pay them back?
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Sep 2009 Posts: 53 | Hi again thanks for your wonderful help,
misskate I have contacted cancer.org
To see if there is anything that can help an Englishman, in his hour of need, as I can�t get help there, it�s a long shot they may know some billionaire who helps deserving cases, so ill have to wait and see.
Hi Eileen,
No the Hospital I go to, Bunrungrad, Bangkok, is mainly for Rich Arabs and millionaires, this hospital is run on the lines of cedars sinai hospital L.A but is probably up to a third cheaper, for the same treatment, so as you can imagine many Americans and other well healed people come here. They are the only hospital with have all the latest treatments here so this is the reason I went there, But in Thailand they don�t cater for charitable trust that I know of.
Yes the doctor does no I have only what I earn and it is not enough even though ill have about 800 pounds a month to put to any loan but can�t get a loan here.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | Jon, You might want to call the British Embassy and see if they can help you find a solution. Your Embassy might also have connections within the British NHS that under the circumstances can bend a few rules that would let you get back to Great Britain for treatment ASAP. Also there are a number of charitable foundations in GB that might be of some help such as MacMillian ( www.macmillian.org.uk ), but I suggest you see if your Embassy will coordinate this for you.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
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