| | Joined: Sep 2009 Posts: 31 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Sep 2009 Posts: 31 | Hi I just wanted to post to say that my surgery is over & the dr is pleased with what hes done. The ACC had spread to saliva gland that was removed but had a clear margin of 1mm. I feel upbeat & relaxed at the mo, but am struggling to get used to my smile or lack of! I feel like a need a smile prop to help things along. Radiotherapy should start in November, Im sure my nerves will kick in before then!
Surgery to remove tumour from on top of saliva gland 3rd August 09. Biopsy revealed adinoid cystic carcanoma. Further surgery 28th September 09 to remove saliva gland, nerve to top lip (buccal branch) & scar tissue.
Radiotherapy finished 30 Dec 2009 IXA x 33 (60gy).
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | pj, don't worry about the smile, it will return in time with encouragement. Sometime it really hurts when you smile or laugh LOL. Congrats on the feeling better.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Congrats on a successful surgery and feeling better.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Oct 2009 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2009 Posts: 51 | PJ,
Many of us are undergoing surgery/treatment for recurrence. Just a personal opinion here, but you might want to ensure your treatment plan "hits it with everything"....as for me, I know longer want the dr's to take the short route, if there is the slightest chance a little more of something just might do the trick....
Barry
57 YO, Dx 10/08 with oral cancer, Surgery 11/08 followed by six weeks of RT treatment with the MASK.
Follow up on 10/15/09 found a soft spot, which turned out to be SCC. Don't know if I can receive more radiation or not since I've already received full dose.
| | | | | Joined: Sep 2009 Posts: 31 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2009 Posts: 31 | Barry
Must admit I was really scared when they say margin of 1mm & I wondered if that was a clear enough margin, I question I shall be asking my dr when I see him next. 1 mm doesnt seem alot. Ive had my mask made & I go back on 11th for more xrays & the dr will decide then what dose of radio Im to recieve.
Real sorry to hear that its come back, please let me know whats going to happen.
M xx
Surgery to remove tumour from on top of saliva gland 3rd August 09. Biopsy revealed adinoid cystic carcanoma. Further surgery 28th September 09 to remove saliva gland, nerve to top lip (buccal branch) & scar tissue.
Radiotherapy finished 30 Dec 2009 IXA x 33 (60gy).
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | Margins scare me too. I'm happy to hear that your surgery went well.
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | |
| Forums23 Topics18,252 Posts197,147 Members13,331 | | Most Online1,788
Jan 23rd, 2025 | | |
|
