| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jon, force feed yourself .I still don't have taste except for the 1st bite, Them it nothing but a burning feeling but I eat anyway or should I say drink because evrything had to be almost liquid. My son got me some muscle milk that he uses as a weight lifer to keep his weight up for the wolrld's strongest man competitions. It will help you put weight on if it is available there. You drink it about an hour before you exercise . I do repetions he showed me 2 times a day and 100 reps each time. I am now up to 171 this morning. The best part is the muscle coming back on my bones. I look human again even without the 50 lbs I am still short of. If i could eat real food , I am sure I could do better.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 53 | Hi Guys, well I thought I would up date you to the drama of my base of Tongue Tumor.
The latest is I just had my 3 month MIR to be told I have a 2cm grey area still, they do not know if it is more Tumor left and growing or Scar tissue, I�m going to have a Biopsy on Friday, but in the mean time, I have had a mouth ulcer at the back of my throat, around where my tonsils would be if I had any, on the left side, that would not go after antibiotics, so the doctor said it does happen like this some times, he gave me some FLUIMUCIL A 600/ACETYCYSTEINE EFFERVESCENT TABLTES which helps with the mucus, I have every morning and it seems to hold bacteria, so it seems to work, and I feel good again, and ulcer seems to have gone now, even though when my throat is dry, it still stings some times or I can feels it/ any one else had this problem.
Well that�s it also if it�s a tumor the only thing left is to have it cut out and this will affect my voice, so can you tell me what happens next and being a Teacher that would be the end for me as they have to cut larger than 2cm to make sure it is all not able to spread again.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 53 | "Base of Tongue Cancer", may be HPV cancer. first a swollen left jaw lymph node, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo of 6 now/35 rad of 35. Tumors gone. can eat. MRI April 19th , Node now all gone wS 6 cm, NOw weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Thanks for the update Jon,
Best of luck with the biopsy. I hope and pray you are just experiencing scar tissue.
You know you have all of us in your corner.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 53 | wELL THE LATEST IS I HAVE NOW HAD A SMALL LUMP ABOUT THE SIZE OF A SMALL MARBLE TAKEN OUT OF THE TOP OF MY HEAD .
CAN YOU TELL ME IF THEY FIND THESE SMALL CANCEROURS LUMPS AND THEY TAKE THEM OUT, DO YOU DIE OF IT. HAS ANY ONE ELSE HAD LUMPS APPEAR 9 MONTHS AFTER CHEMO AND RADIATION.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 |
Jon, Im sorry to read of your latest problems. Im not familiar with the lumps you have experienced. Wishing you all the best.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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