Well David I must be in that 5% bracket since mine was HPV. Had leukoplakia but they insist that did not cause it but the papilloma did. I would have to be one of the small percentage ones.

I received this email from Penny this morning and am posting it. I do not know why she can't log in but will try to email her again. If anyone else can please email her and can we try to help her get through this first bad nes? Thanks to all who can.


Doc called and said IS cancer wantes me in office right away. he is out of office tomorrow and said Monday was not soon enough, so he will see me at 12:30 today.

Over the last week, I taste blood from my sinus and breath constantly it smells like spoiled meat and the mucus secretions I cough up are terrible tasting, having hard time swallowing. The Doctor has not given me the opportunity to tell him of the neck and chest symptoms, he interrupts and distracts me and I get so nervous I am easily distracted. The growth under my tongue has completely grown back and is larger than before the biopsy, sore throat and tongue and i am having problems with respiration, I have thaat bright cherry thing going on, super pink skin tongue and tissueslike carbon monoxide poisoning. My 11 yr old has no one, there is no other adult memebrr in my family that can help out emotionally, physically, or financially. What do people who have no one else other than their children do to treat and cope with these kinds of cancers? Having no insurance and no financial resourses to cover treatment. well I am not sure what is going to happen and I am so scared.

I tried logging in to the forum, and when i enter my ID and Password it takes me to the forum page but says I am not logged in.

Will write later after see the DR.
Thank You
Penny

Tell her to make certain she is using .ORG not .COM. That was the error I was making when I couldn't get logged in.

Take care,
Eileen

She sent me the same e mail this am and we have been exchanging e mails all day, in fact I just responded to her latest. I am trying to help her get Medicaid and file her back taxes.

Thank you for I wish I had known about this site when I was going through the beginning back in January 2008. I did no know anyone and felt lost until after surgery. I had no where to turn and had only the oncologist to depend on telling me what to expect. I will keep in touch with her as well for she is going to need a lot of emotional support.

BIG Thanks to Davidcpa, His office assistant gave me some really great pointers and directions to work in. Still don't have the medicade issue settled, everything seems to move so slowly, i make calls(usually getting Vmail boxes at the beginning of the week and IF anyone calls me back its usually on Friday to tell me that they will call back the following week. I know I am being very general here, but I am STLL waiting to talk to a real human being for several places that I have been told,"should" be able to help me.

Sold off car that I still owed money on and got back about 1500.00, put the other car in neighbors name(it was causing terrible fights in the family as to who would be getting my car, so much so that my daughter has cut me out of her life and told me not to call her for anything)

FINALLY found(rather they found me) a place out of my county that would do my PET scan for just 1500.00, my local Hospital was willing to take 40% off their fee and only make me pay part down and payments on balance, but even with the medical centers generous? assistance, my fee for the PET would have been in excess of 3+K.
The rest of my quest for help is totally at a standstill, I have been trying to find out more information about my Brothers cancer and surgery(I was told by his ex-wife that his tumor was in the throat 3 months ago and smaller than peanut and that last week tumor removal was finally approved by his medicade and the tissue mass removed from his neck was the size of two grapefruits, and that he was diagnosed with "lymphoma" but she knows nothing else and could not answer any questions as she said that the doctors have not told him anymore(this after being hospitalized for over 3 months?) .
well I hope IF I get on Medicade that I will not only have access to treatment, but would still be nice if I still have a voice and a choice about some things and that I am still treated as a person of some intelligence.

I am meandering. I am sorry. My Pet scan is done, waiting on results and have to go back to that ENT Doc who got ticked off at me when last week I was having terrible neck spasms and could not raise my head and open my mouth fast enough for him, he got angry with me and talked to me like I was a defiant idiot, actually made the statement,"Look, I am having a good day, I will not let you spoil it" and he left without saying or doing anything further and I went to check out was just told to come back in a week. the collective office staff was behind the counter, and I asked in general to the group, where'/who should I call to find someone or organization that might help me get a better focus on whats programs and services are available in the area, and the various reactions from shruggged shoulders, shakes of heads. and whe I looked at any 1 person no one ever seems willing to make eye contact with me. I do not have a good feeling about any of this, but i just really don't know which direction to go.

I want a cure, i dont want to be just babysat util I die