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Joined: Sep 2009
Posts: 4
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Joined: Sep 2009
Posts: 4
I think I finally found a group that can help me deal with this overwhelming challenge. I am told because of the positionng of this tumor I will need a total glossectomy, feeding tube for life and most likely a total laryngectomy. I have lots of questions but I can't see to find someone that has all these procedures. I am still not sure that if my larynx is cancer clear why they feel I should still have the laryngectomy to avoid accidental choking and pnuemonia. Please if anyone can shed light on what I am facing I would be most grateful. This is my second time around. Two years ago I had SCC in the neck, which was removed, followed by radiation. I look forward to learning from you all, and sharing my experience. Power through knowledge and support.

Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Hi,
Did you also post as Jason something or other? I can't believe we have two new members both facing total glossectomy and a total largectomy both from Texas. Anyway, I am not going to respond twice. Please see my update in the Jason post which I'm about to make.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Sep 2009
Posts: 4
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Joined: Sep 2009
Posts: 4
Jason is my son. I will check Jason's post. We are all trying to get as much information as possible.

Thank you!
Art


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