I think I finally found a group that can help me deal with this overwhelming challenge. I am told because of the positionng of this tumor I will need a total glossectomy, feeding tube for life and most likely a total laryngectomy. I have lots of questions but I can't see to find someone that has all these procedures. I am still not sure that if my larynx is cancer clear why they feel I should still have the laryngectomy to avoid accidental choking and pnuemonia. Please if anyone can shed light on what I am facing I would be most grateful. This is my second time around. Two years ago I had SCC in the neck, which was removed, followed by radiation. I look forward to learning from you all, and sharing my experience. Power through knowledge and support.

Hi,
Did you also post as Jason something or other? I can't believe we have two new members both facing total glossectomy and a total largectomy both from Texas. Anyway, I am not going to respond twice. Please see my update in the Jason post which I'm about to make.

Take care,
Eileen

Jason is my son. I will check Jason's post. We are all trying to get as much information as possible.

Thank you!
Art