Hey TL4885,

In just skimming forwards, it looked like this question got missed?

Not being a doctor or ever having played one on TV, I would remember to mention that "crick in his cheek" to a doctor for sure.

Post treatment, pains and twitches continue, but declined as time went on for me, with a few ticks still present after a couple of years.

Take the smile, laughter and apperent good mood as a gift to be enjoyed, while being the vigilant and devoted care giver that is seems you are.

I hope the journey is quick and sucessful,

UncleVern

UncleVern, Thanks for your reply. I checked for responses for a few days and figured everyone was just tired of responding to me because Brian is not willing to fight a conventional fight. I appreciate your taking the time to respond. He is still working but we are having a very rapid pulse rate. He goes to 100 mg of MTX next week. His Dr has told him his heart may not hold up to the dose, but this is Brians way. He IS going to die. I have accepted that, but I am in no way ready for it. He is not affectionate or loving anymore--not even in his tone, but I know he loves me. Days are hard and nights are so long, but we are making it pretty good. Thank you again so much for your support. It is appreciated more than you will ever know. Teresa

Theresa, I so feel for you. This must be so sad for you and you must have many, many questions as to why he won't have conventional treatment. I watched Steve have 7 weeks of treatment and not once did he seem as ill as your brian. I feel sad for Brian that he didn't give it a try and that in the end he's chosen a harder road. But it's not for me to say what he should do. I suppose he know's his own mind and trust me I know how hard it is to live with a stubborn man. But I do feel very sad for how hard this must be for you. You must be an incredibly strong woman to be able to go through this. My thoughts will be with you as you travel this painful road.

Wendy

Continued prayers your way.

Thanks to all for your continued support. We went to two doses of 150mg methotrexate this week. The first dose was Tuesday and was not too bad other than draining alot of Brian's energy. He had his mom shave his head on Wed. because his hair, which has always been extremely thick, was thinning to the point of being noticable. She noticed as she used the shears that is was falling out and raised some questions to him.I hope she will not let up until he finally reveals his condition to her.
Dose two at 150 mg was last night and he woke with very little vision this morning. Can anyone tell me if this is a temporary side effect or if vision impairment is usually permanent. I am, of course , very upset and concerned with this development. Thanks for any info you may be able to offer. Teresa

Hi Teresa,
I don't know much about the type of medication your friend is on but like other chemo therapies it sounds like it can cause a wide array of serious side effects. My husband was on 5fu and cisplatin. His treatment had to be briefly interrupted due to the severity of the side effects. Your friend needs to report these symptoms to his doctor...ASAP! Sometimes they can give him other medications to reduce the severity of the symptoms. Please tell him that there is no need for him to suffer like this and remind him that there are other treatment options.
Pat

Hi Teresa, sorry to say I'm not much help with the medication Brian is on. Steve had cisplatin and his only side effect was nausea. It's a shame you can't get Brian to check out this site. Hopefully it would make him realise that the path he has chosen seems so much harder than the conventional treatment that he didn't want. I hope you are both ok. You are both in my thoughts continously and I do wonder how you must be coping. You surely are a tough lady.

Wendy