| | Joined: Jan 2008 Posts: 26 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 26 | Amy,
I'll be thinking of you and praying for your quick recovery. Remember to go wild and eat and enjoy anything and everything you can and want before surgery.
Kim
08/24/07 Dx at age 44 never smoker, occasional drink
T1N0M0 G2
09/06/07 partial glossectomy(rt),neck disection (rt) 32 nodes clear
12/05/07 35 RTx w/boost, 63 GY, finished
12/28/09 PET/CT all clear!!
12/19/11 check-up, all clear - 4 years cancer-free now !!
| | | | | Joined: Feb 2009 Posts: 88 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2009 Posts: 88 | Amy,
So sorry to hear about this re-occurance we can all understand. Take care of yourself and give yourself a special treat of some sort before you have to go through this again. I will be praying for you and for your quick recovery.
God bless,
Bonnie
CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
| | | | | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | Hi Amy,
Just want to add my thoughts and prayers to all the others. Glad to know you'll be able to get the surgery done quickly and then can focus on healing! Best of luck with it all,
-Tricia
CG to spouse, tonsillar SCC, T2N0M0, tonsillectomy 9/06, 35 rad tx finished 12/06, no chemo. Positive PET 3/07 in tonsillar fossa (residual tumor), surgery 4/2/07 composite resection tonsillar fossa and BOT w/forearm graft and right ND.
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | Thanks for all the well wishes. It helps so much.
Today is my PET/CT scan. The last time I had one done. Which was almost one year ago. (9/29/09) They gave me the results within a few hours. We went got something to eat and then meet with the doctor that read them. I walked out of there with color copies of the scans to bring to my doctors and several cd copies. I'm hoping for the same wonderful treatement today.
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 | Amy
So sorry to hear about your reoccurance. Good luck with treatment. Keep us posted.
Sandy
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Amy,
I'm sorry that you're having to go through this again and am adding my prayers to everyone else's. I know this has all happened very fast but sometimes that is much better since you don't have lots of time to worry about it. Hope all goes well with your surgery and recovery.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | Thank you,
I'm back from the PET/CT scan. I have some very beautiful pictures that only have one rather large spot that glows. Nothing anywhere else. Thankfully. The only thing I can read and make since of is the SUV=19. I understand this to be a very high number. However, since I already had the area biopsied it wouldn't have mattered if the number was 2. I think all the other numbers on this are just the x and y axis numbers or something along those lines. She was going to do the dictation later today and send it out to me.
I do have a question. I guess it's retorical, but boy I would like an answer.
On June 10th I had a CTscan. It showed some edema in the left mandible area and that as really about it. Not a mention of the right side of my head or neck. Less than three months later I have a tumor that is big enough to see? Does that sound right? I know that SCC is agressive I know that it is fast moving, but man, just how could this be?
I know my question is just a dressed up version of why me. But if someone has an answer to this that makes a little bit of since, please tell me!
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Well Amy all i can say is Rob had a clear body scan in January and in June he had FOUR tumours in his chest.When this critter is agressive it seems to spread like wildfire.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | Liz, That's just how it feels. Wildfire. Ok, today's the big day. I have to be at the hospital at 10:30am central. I'm no longer nervous, just ready to get it over with. I only have a couple of things left to do. Drop the pour spoiled doggy off at the kennel, drive 60 miles, that kinda thing. So, with that I'm out of here for a couple of days. If anyone would like to check up on me, I have a caring bridge website. My darling husband will be updating for the next couple of days. www.caringbridge.org/visit/amyknight
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Feb 2009 Posts: 88 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2009 Posts: 88 | God bless Amy and good luck on your surgery. I will be thinking and praying for you as you move through your next phase of treatments.
Bonnie
CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
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