#10199 04-15-2007 05:18 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Jerry
Again just a hearfelt thanks to you and everyone else that participated in that walk !
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#10200 04-15-2007 08:54 PM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 117 | Hi, Everyone!
I know that most of you don't know me because I am not a big poster, but I am a huge supporter of the OCF and Brian, raising public awareness, and promoting early detection. I wanted everyone to know what a great job Jerry did speaking on Saturday and how huge a task it is to raise $3310! We ahould all be very proud of him and grateful because his fund raising efforts will allow all of us to have access to the resources of this website and the OCF for just that much longer.
I also want to say that I made two new friends on Saturday -- Jack and JoAnne. Jack's recovery is remarkable, really, unbelievable. That robotic surgery is something else. Brian, we need a story on that. Aside from that, these are two of the nicest people I have ever met.
One thing I have found is that everyone I have met through OCF has been wonderful -- proof that bad things happen to good people. But also a reason why more of us need to get invloved in these events. Not only does the fundraiding make you feel great and give you an opportunity to do something about this terrible disease, you get to meet some of these people that you know initmately from these message boards face to face. It is so much fun.
There is a walked planned for Chicago in September. I plan to be there, although, I will not be able to repeat my fund raising efforts again so soon. So OCF needs some of you to plan to raise some money and attend. Does anyone want some help with fund raising? I've got plenty of advice and I am sure Jerry does too.
Looking forward to helping,
Barb
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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#10201 04-16-2007 08:27 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | When Barb says she is willing to offer help with fund raising she is speaking with experience. She has done great things and raised a lot of money for OCF even though she is probably too humble to mention it. Some of you in Chicago can take the ball and run. Maybe we should be planning another OCF get together. Chicago is centrally located and could be as much fun as Vegas was back in 2004!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#10202 04-16-2007 03:47 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | All I know about fund raising, I learned from the expert, Barb. She probably has raised more money for OCF than anybody.
She shared her solicitation letter with me and I modified it for my use. As she said, we are available to help. I will send a copy of the letters that I mail and or email to anyone that wants it.
Remember that an event is not necessary in order to solicit donations from friends, co-workers and family. You just have to believe that what you get from the website and especially the forum, are worth having around for yourself and those that will surely follow you.
I'm still getting checks in the mail from some late-mailers. I will be forwarding them to Brian by the end of the week.
Jerry
PS does nayone know who Jennie Bradstreet is? She sponsored me via the website and I would like to thank her.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#10203 04-16-2007 04:23 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | If you do a search of the OCF site for "surgery" and "robot", you will find 6 articles. Here's the most recent one http://www.oralcancerfoundation.org/news/story.asp?newsId=1175 - Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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#10204 04-16-2007 04:34 PM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 117 | Ed,
Thanks for your kind words, Ed. Once we have a firm date for the walk in Chicago, I would love to help plan a get together.
Barb
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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