| | Joined: Jul 2009 Posts: 8 Member | OP  Member
Joined: Jul 2009 Posts: 8 | I'm waiting on pathology from lnd 8/11 . I had staples &drain tube removed 8/19/09'Thank you to all 'for your Info on here. Doc said FOM is clear 8 hour surgery' 9 days waiting for path on NODES????? VA Gainsville fl/UF Shands . Feed back appreciated
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | Floor of mouth Invasive SCC.
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So then what are your questions?
So they removed your Primary and did a ND and you are waiting for the path report, correct? How was the SCC diagnosed to begin with?
I assume you have been scheduled for radiation perhaps with concurrent chemo (Cisplatin)?
Ask away
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | I'm not scheduled for Rad or Chemo. Unless nodes are pos. The waiting is rough ,seems like forever just wonderd,avg time path takes after surgery. Thanks.
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Like everything connected to this cancer, it can take anywhere from on the spot to 3 weeks. The FNA my ENT did on my node took almost 3 weeks and yes it's torture.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | Thanks David ,I will update when Iknow.
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Dana - My husband goes to Shands for his check-ups, in fact, is going there on Tuesday. He used to see Dr. Villaret, whom we loved, but he moved to the Carolinas : ( Now we are seeing Dr. Cohen, who has offered some treatments that really seem to be working for my husband. Who do you see?
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | I see Dr Isaacs at the VA.I like him alot,he is the chief of ENT. Also my wife is my CG my name is Brian she is Dana.Ive had great care with the VA system over the years.I had 3 bypass in 98 in Mich VA.
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Mar 2009 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2009 Posts: 32 | Good luck, Brian. I'll keep my fingers crossed for you and Dana. IMHO, being the caregiver is as tough (maybe tougher) than being the patient. My caregiver, my spouse of more than 30 years, was top notch.
John Retired US Government (DoD)
Age: 61
SCC/BOT discovered neck mass 11/08
Removed neck mass 09/01/09
Final Diagnosis after scoping on 02/08/09
Chemotherapy and Radiation: Paclitaxel and Carboplatin, 8 weeks of chemo (1X weekly) and daily radiation both sides of neck). First treatment 03/02/09
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