| | Joined: Jul 2009 Posts: 8 Member | OP  Member
Joined: Jul 2009 Posts: 8 | I'm waiting on pathology from lnd 8/11 . I had staples &drain tube removed 8/19/09'Thank you to all 'for your Info on here. Doc said FOM is clear 8 hour surgery' 9 days waiting for path on NODES????? VA Gainsville fl/UF Shands . Feed back appreciated
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | Floor of mouth Invasive SCC.
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So then what are your questions?
So they removed your Primary and did a ND and you are waiting for the path report, correct? How was the SCC diagnosed to begin with?
I assume you have been scheduled for radiation perhaps with concurrent chemo (Cisplatin)?
Ask away
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | I'm not scheduled for Rad or Chemo. Unless nodes are pos. The waiting is rough ,seems like forever just wonderd,avg time path takes after surgery. Thanks.
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Like everything connected to this cancer, it can take anywhere from on the spot to 3 weeks. The FNA my ENT did on my node took almost 3 weeks and yes it's torture.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | Thanks David ,I will update when Iknow.
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Dana - My husband goes to Shands for his check-ups, in fact, is going there on Tuesday. He used to see Dr. Villaret, whom we loved, but he moved to the Carolinas : ( Now we are seeing Dr. Cohen, who has offered some treatments that really seem to be working for my husband. Who do you see?
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | I see Dr Isaacs at the VA.I like him alot,he is the chief of ENT. Also my wife is my CG my name is Brian she is Dana.Ive had great care with the VA system over the years.I had 3 bypass in 98 in Mich VA.
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Mar 2009 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2009 Posts: 32 | Good luck, Brian. I'll keep my fingers crossed for you and Dana. IMHO, being the caregiver is as tough (maybe tougher) than being the patient. My caregiver, my spouse of more than 30 years, was top notch.
John Retired US Government (DoD)
Age: 61
SCC/BOT discovered neck mass 11/08
Removed neck mass 09/01/09
Final Diagnosis after scoping on 02/08/09
Chemotherapy and Radiation: Paclitaxel and Carboplatin, 8 weeks of chemo (1X weekly) and daily radiation both sides of neck). First treatment 03/02/09
| | | | | Joined: Jul 2009 Posts: 8 Member | | OP Member
Joined: Jul 2009 Posts: 8 | I saw my docter 9/2/09 .He said my nodes were clear.No rad,no chemo. I will see him every 6 weeks for 1 year,CT scan,ect...Thank's to everyone on here for all your wisdom,compasion,and humor! I'm so greatful for OCF,my wife and I learned so much. Thanks again ! Brian
Age-48-Male DX 7/1/09 Primary 1.5 lieson FOM SCCa Surgery 8/11/09 LND waiting on patology report.Wife is Dana'CG'.My name is Brian.9/2/09 Nodes clear no Rad no chemo !!!I will see ENT every 6 weeks for 1 year for follow up.One day at a time!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2009 Posts: 88 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2009 Posts: 88 | Way to go Brian. Good report and glad you made it this far. I will be thinking of you and praying for you as you continue to move forward with your new normal life.
God bless,
Bonnie
CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Congrats brian . You just gave a lot of people hopes
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | That's great news Brian!!
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Wonderful news Brian.
Wendy
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Fantastic to hear...for you and Dana...xxx
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | PS...if I do 2000 posts or more within the next 12mths, I don't want to be classed as an 'old timer'...savy??!! lol {no offence Jim!! lol}
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
| | |
| Forums23 Topics18,199 Posts197,006 Members13,185 | | Most Online614
Jul 29th, 2024 | | |
|
