| Joined: Apr 2007 Posts: 64 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2007 Posts: 64 | Well, I for one love these threads, I was feeling alone until I came back to the forum. My family I think are the biggest idiots of all, I have heard everything from them, like "its over now, so get over it", or how about if you only ate raw onions or garlic like me you would be fine. Picky eaters always get cancer...:) and yes, the all time favorite, "God never gives us a burden we can't carry" like we have a choice..
Adele, mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo, 11/07 surgical biopsy of lymph node left neck, no cancer!
| | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | Are you serious?? I had no idea one type of cancer was more 'real' than other types! Who knew??
But really, what kind of idiot thinks that??
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | In a similar vein,about 2 months after I finished treatment I was at a board meeting for a community group for which I serve as a Director. One of the other directors was talking about how a guy he has had a bunch of battles with over the years had been recently diagnosed with terminal cancer. (Keep in mind that all of the members knew about my battle). He blurts ourt: "Serves him right. Cancer is God's way of punishing people for their sins." Really??? Geez, I knew I smoked and drank a little, but that's a tad harsh, don't ya think? Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | I think because people have never heard much about the oral cancers, they don't think it's all that much. When I was 1st diagnosed I was telling some of my closer friends at work, giving them the facts before the rumors got started. One woman with whom I've worked 17 years, been on bowling teams with and all, asked "well, is that really serious. I mean, it's not something you can die from or anything like that, is it?". But then, really, how bad does tonsil cancer sound?
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Oct 2008 Posts: 49 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2008 Posts: 49 | I disagree. People are idiots and most have a bad habit of inserting their foot in their mouths. My Dad who passed away two years ago of Non-Hodgkins Lymphoma told me to let it all go...he also, always told me that you are screwed when you are diagnosed with oral cancer. Who knew that I would be touched with it? The big C is raunchy no matter which way you look at it.
By the way, my Dad was a saint on earth...God most certainly did not punish him for past sins...whoever said this takes POS award.
Donna
Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Jeff, I would have invited that nitwit outside for a private talk, Very private. LOL Then educated him.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Apr 2007 Posts: 64 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2007 Posts: 64 | Hey, these were educated idiots, one is a high school teacher her husband a college professor...go figure! People only think in terms of the cancers they hear about in the media and unless they are touched by it themselves, they just don't know. I have had so many people just look the other way when I tell them and say they have never heard of it, as though it does not exist..oh well!
Adele, mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo, 11/07 surgical biopsy of lymph node left neck, no cancer!
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | Educated idiots.... I like it. Still that is more palatable than the self righteous morons invoking some deity's wrath.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2008 Posts: 130 | Just before starting treatment I ran into an old friend, who did not know I had cancer. She was telling me about a mutual friends father and his battle with cancer. I just kinda told her, so do I. She looked at me, blinked twice and said, "No he has it "REAL BAD" You just have to shake your head.
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side. ND March 2, 2009 reoccurance dx'd Aug 19, 2009
| | | | Joined: Apr 2007 Posts: 64 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2007 Posts: 64 | oh yes, that one..there was no type of chemo available for my cancer and i was extremely lucky to dodge the radiation, as it only gave me a very small margin of reoccurance protection, so we opted out of it and to this point we made the right decision for me. But, I often hear from well meaning jerks, "well you didn't have any treatment, so you must not have had real cancer" omg, invasive surgery that changes everything in your life, was not enough for them...LOL
Adele, mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo, 11/07 surgical biopsy of lymph node left neck, no cancer!
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