| | Joined: Aug 2009 Posts: 6 Member | OP  Member
Joined: Aug 2009 Posts: 6 | Thank you so much for all of your kind words! I am so thankful that there is an outlet for me and I have the opportunity to reach out to such wonderful people!
Kerri M, 41
6/12/09 Tongue Cancer SCC stage 2
7/2/09 Partial Glossectomy clear margins
modified radical neck dissection
39 lymph nodes removed- all clear
7/31/12 Tongue Cancer Stage 1 (unrelated to first diagnosis)
8/6/12 Partial Glossectomy clear margins
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Kerri,
I understand just what you mean. I had my last surgery in February, 2009. I have had 4 partial glossectomies. I know what you mean about these words being in our vocabulary, It's crazy!! It will get easier and talking about what you are feeling with family and people here will help. Just let yourself feel what you need to. We are all here to help and support you. This is a great site for that. I imagine you go every 2 months, like I do. I actually just stopped typing and told my husband that I'm scared b/c my doc found bumps on my tongue yesterday. She said not to worry, but I can't help it. He reminded me, and I will remind you....if we go every 2 months if something is there, it will be found early. Keep us posted and let us know how you're doing.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Kerri,
What you are feeling is very normal. I had two partial glossectomies in a week. The cancer was completely removed like yours. This was 4 months ago and I still get worried and scared about ever little sore in my mouth. I think I called the Dr. every other day for awhile. They were so understanding and said to take it easy. It does get a little better with time, but that fear will really never go away. At least it hasn't for me. Glad they got it all.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: May 2009 Posts: 114 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2009 Posts: 114 | Yes. Went fine. I just burnt myself.
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I should add that I had 2 more surgeries after the intitial one and lost more tongue each time. Now I need more biopsies for nasty tomgue and lumps plenty of pain.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 72 | Kerri,
Welcome to OCF. I have been and are now again right where you are. I am happy to read that there was no lymph node involvement, In my 1st neck dissection there was only 1 mm of cancer. No radiation at that time. The fear will gradually be pushed to the back of your brain. Of course keep an eye out for anything suspicious and get with your Dr quickly if you notice anything. I will be praying your recovery goes well! Good Luck!
*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!
| | | | | Joined: Aug 2009 Posts: 2 Member | | Member
Joined: Aug 2009 Posts: 2 | | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Hi Jollivee, LOL I think you are a person of few words. Have a great day and smile so people wonder what you are up to!!!
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jollivee,
Now that you have introduced yourself feel free to tell us about your Caregiver experience with OC.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Hi, Kerri -
One year, 2 months cancer free, & I worry it might come back. It could, but I try to not let that fear take over my life. I'm glad I found OCF and continue to find inspiration here. Take care and good luck!
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
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