| | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | OK, this is getting really annoying. I am 25 months post-treatment and the tightness in my neck, if anything, is getting worse. It pulls up both sides of my neck in the front and under the jaw, from the sides down to the chest (presumably SCM) and from the shoulders up the back. The pulling in the front is apparently pressuring some nerves, which is not overtly painful, just more pressure than anything.
Exercises do not seem to be doing much. Anybody have experience other things to try?
Last edited by JeffL; 08-11-2009 08:19 AM. Reason: left out some words
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Have your tried massage or physical therapy? Sounds like scar tissue that needs to be worked out.
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | If you find anything to relieve it Jeff, post it for us all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 | After doing some slow neck stretching exercises daily (shown to me by a physiotherapist), I have been using a "heat pack".
It is heated in the microwave for about 2 minutes and then I sit it around my neck/throat like a collar for about 3/4 of an hour. It has softened up the damaged tissue and it is also very relaxing because it relieves the pulling and tightness. The one that I have is 45cm x 20cm and cost AUS $20.
Karen
Last edited by Karen Rose; 08-16-2009 05:37 PM. Reason: typo
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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