| | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Long story short: yet another study showing that those who have HPV positive cancer do much much much better than those of us whose tumors tested Negative for HPV. So David's focus on HPV is something everyone should insist on finding out. Here is the link: HPV survival rates There is a racial twist to this story but I was focusing on the HPV aspect. Please bear in mind that these news clips are NOT vetted like the research you see on the OCF reader , so they are probably sensationalized but it does seem to lead credence to having all head and neck cancers tested for HPV. In another post on a different thread, I tried to see if anyone who has had a recurrence was HPV positive and the thread died out with only HPV negative recurrences like myself.
Last edited by Charm2017; 07-29-2009 02:25 PM. Reason: typo
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | When I found out I was HPV positive almost 3 years ago and the first results showing improved Tx results and improved survival results I began encouraging others that fit the HPV profile to get tested for 2 reasons: 1. If they tested positive it might give them a mental boost as it did me and I was also self vindicated because since I had devoted my entire adult years to health and exercise I didn't want to be told that my cancer was caused by tobacco; 2. I wanted more people to be tested so more info could be tracked about HPV+ patients rather than potentially HPV+ people not being tested and thrown into the HPV- pool so to speak.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Is it wrong that I want to be tested positive for an STD?
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Hell no...BTW oral HPV can be spread by kissing so if that's a pathway to an STD then whose not at risk. By age 50 over 80% of females test positive for HPV (no current mass test for men) and I guess the other 20% are nuns. Just kidding now. Almost all of us have come in contact with HPV and fortunately (perhaps for now) it only goes bad in a very small percentage of us lucky ones. I think our doctors throw around that STD phrase to casually.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I just went for my annual Pap smear this week and was pleasantly surprised to learn that they are now doing HPV testing on everyone that comes in for a routine pap smear. Of course, they had no idea that it could cause anything other than cervical cancer. Take care, Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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