Nancy

the aspiration page on OCF is being revised. Here is a link to swallowing problems: Dysphagia Very good information and knowing the right terms helps talk to your therapist.
I failed my Barium Test in March and have been on the PEG now since then, with another Barium Test next week. My prothodontist is making me a palate drop - sort of like a retainer but made to fill in where my tongue no longer goes after the surgery- to help me swallow so I will have it tested to see if it helps. Plus I am starting on a second round of therapy and trying electrical stimulation - VitalStim which Georgetown Univeristy Hospital offers. It is so hard not to have had even a sip of water or a crumb of food all these months with no improvement in sight,
Be strong, and know that with 6142 members, thousands of us can relate to what you are going through. Life is very hard for us oral cancer survivors but we can make it
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13