 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Suzanne, The majority of HPV+ SCC's are located in the Orophyrnx region which includes the BOT and Tonsils but not the part of the tongue where your Primary was located so your chances that HPV was involved are low. That may be why your doctors were hesitant to do the the test. You can always pay for it yourself and then submit the bill to your ins co and see what happens. I was told 3 yrs ago it would cost $600 and I would think that cost may have come down by now?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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