Pat, very soon this will all be over. As the caregiver your job is very difficult. You must not only take care of the patient but try to be positive as well. I dont know how you have managed to work full time thru this. You are a very strong person, be proud of your accomplishments.

Try to take some time for just you. Even 10 minutes a day to just catch your breath away from all your pressures and responsibilities.

Very soon will be the time for rest. When treatments are first finished your husband will rest alot. I stayed in bed about 22 out of 24 hrs per day. I only got up right before my kids got home so they wouldnt be worried that I didnt get out of bed. I went from bed to couch then after spending a little time with them I was right back to bed. Your husband is so lucky to have a caregiver, I didnt have one and dont know how I got thru it.

Hang in there the end of this whole thing is coming up very quickly. Remember, all the doctors are just a phone call away. Since your husband has the peg tube, your hospital might have a visiting nurse. I am also 45 minutes away from where I was treated and I had a nurse come once or twice per week to check on me. It was only for a couple weeks, but it was very reassuring. Ask at the treatment center if thats available. It would give you a hand.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile