OP Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | This past Wednesday John was 9 weeks out of treatment. He is slowly starting to eat some things by mouth. He has no appetitie and really has to force himself. He is still using the feeding tube - thank God he had that put in. He really didn't want to and really thought he would make it through without one. Even with it in he has lost close to 30 lbs and currently weighs 144 lbs. His weight has remained stable for the past few months but he really wants to gain weight and get rid of the feeding tube. I ordered the Carnation VHC for him so hopefully that will help.
Today he had a check up with the Medical Oncologist. His white blood count was only 2.4. His blood pressure was 80 over 60 and his heart rate was up so they gave him some IV fluids to rehydrate him. John has a kind of weird thing going on. He has permanent hearing loss in both ears from the Cisplatin. This didn't show up until he was done with the chemo. He still has ringing in his ears but every once in a while he "hears" a swishing noise in his head. He said it isn't in his ears, it is in his head. He said it sounds like sand in an empty can. He asked the doctor and he said he had never heard of that one. Any suggestions? Have a great weekend and a Happy Fathers Day.
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
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