Jim
I am just a little bit worried about your line"i have pretty much decided not to do the 3 cisplatin"

while i am a great believer in being your own advocate,i also think if Medics advise a course of treatment its a good idea to respect their expertise if you are confident in their qualification to treat you.Rob was never offered chemo,which at the time i thought was great news and meant his dx wasn't as bad as some people weknew at the time.He had a recurrence 8 weeks after finishing all his surgery/treatment and was offered no further options.i often wonder if this would have happened if he had been given concurrent chemo and the guys going through this crap at the same time as he was are still here to tell the tale,and had much worse initial dx than he did.I know some people take the view point that chemo can be held in reserve if the worst does happen,but sometimes if the worst does happen its too late.

I guess what i am saying Jim is throw everything at it you are offered .A few weeks of crap is better than the alternatives.

love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.