Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | [quote=davidcpa]During the worst part of my Tx taking a shower was the equivalent of running a marathon. I also couldn't concentrate on anything for very long. Keeping up with Judge Judy was a challenge. [/quote]
Great reply, LOL!
My husband owns his own business and is very, very independent and likes to take care of everything himself. He was convinced he would work through treatments, drive himself back and forth and continue to eat by mouth. Well........around week 3 he "hit the wall" and just getting out of bed to get to treatments was a chore. The last 5 weeks of his daily treatments I had someone drive him to and from treatments. He became totally dependent on the feeding tube around week 4 and just yesterday (7 weeks out of treatment) had his first bite of "real" food. Even with the feeding tube in John lost 30 lbs. He started at around 170 lbs.
My husband owns his own Upholstery business and has to communicate with his clients and vendors over the phone. Between the thick mucus making him gag and throw up and the pain when he talked, he was unable to talk for over a month. I guess like they say - pray for the best but be "prepared" for the worst.
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
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