| Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I brush my tongue all the way back, the roof of my mouth, the sides of my tongue between my cheeks and gums, between my tongue and gums, this at least 3 times a day and I do it very thoughly and hard with a soft brush, My tongue is still gray and the muscle sticks up further than anything else. Sometime the moisture that comes out is a nasty shade like dried blood. But I do what I gotta.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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