Clark

WELCOME. Sorry you had to join our little club. Happy to see that you are already contributing by pointing out the difference in pain and hassle between getting the PEG before Rad TX or after - and from personal experience, Way to go !
I still have half a tongue and I hear your frustration. Your story sounds so familiar. While I hope to be able to swallow, it is amazing how moist your mouth gets with the spit that used to trickle away but not builds up. And yes, two all clear Pet scans in May and October 08 after TX were trumped by the persistent ear pain (which was my only symptom back in 07) in Dec 08 - cancer back.
There are posters here who have had a total glossectomy so I will let them light the way for you, And YES, you can not only express yourself here but to people who can actually understand. Welcome again
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13