Mary

I wish I had answers for you but I need to learn how to swallow myself again and haven't yet. Still it sounds like you are doing all the right things and more. I can only imagine how frustrating it is for you as a caregiver to deal with this, especially having made the sacrifice of your job,
While I can't help with your husband's problems, let me suggest that you post a thread in the forum: Introduce Yourself. You could ask the caregivers here their coping tricks. We have a sympathetic group of caregivers here who could provide you some words of comfort. Nobody but another caregiver of a patient with serious impediments can truly understand what you are going through. I do know that it is vitally important that you take care of yourself first in order to care for him. Introducing yourself is the best way to start getting some support from those who have been there. So sorry you had to join this forum
Finally THANK you for posting a 30 year survival story,
Charm