I am almost 2 years post-treatment. I had both centuximab and cisplatin as part of a clinical trial. I never had acne. I did have hair loss -- signifiant thinning all over my head as well as the loss from radiation on the back of my head. My hair has grown back fully.

The condition of my mouth is my problem now. I had a severe case of mucositis and my mouth hasn't fully healed. I can eat but only bland, soft foods very slowly.

I wonder if centuximab dosage might account for the very severe, long term side-effects you are experiencing. I don't know the exact dosage I was given. If I remember correctly, it was based on my body weight.

marilyn