Connie,

The vast majority of us here had some type of delay in our dx's. We did because of a move and new insurance and getting established with a PCP who precribed an antibiotic for Bill's sore throat until he could see us two months out. We he finally saw Bill's throat, he had that look like "I screwed this one up!" Thankfully, at that point we did know that we needed the big guns.

Anyway, take that anger and use it toward the resolve to get well...it will take everything you have to do it. Bone up on your nutrition and calories and get a notebook in order with all your docs and paperwork. The plastic sheets that hold business cards are a godsend and I still us that notebook for reference and phone numbers..that way everything is in one place and you can grab it when you see each physician. That alone will keep you busy and productive.

We are just 1/2 hour north of you and an easy drive off the interstate. Call if you need some support or info.

Deb