Claudia

Can he go back to the therapist again? I have been in a similar position where I was starting to get back on track and then had the operation for ORN and was back to square one, again.

If he is supervised by a therapist, he might have more confidence. I was fortunate after each surgery that my swallowing went smoothly and they encouraged me to swallow while I was still in hospital even after my jaw was reconstructed, I might add half the water ended up down the front of me to begin with.

It might sound crazy but I'm glad no one besides nurses and therapists have seen me dribble water or mushed up food out of my mouth when I first started to swallow again, its humiliating - he might feel the same.

Even if he can try a little water through a straw that would be a breakthrough and probably give him the confidence to have a little more and so on. I think under supervision from the therapist would be the way to go.

It really is the PITS... but it sounds like you are doing an incredible job.

Karen