Chemeng,

I like you had a "misread" biopsy after my surgery. It only came to light when I went for a second opinion and they took a second look at the biopsy from the surgery, and sent an amended report that the �margins were involved with malignancy� � not the kind of news you want 6 months later. Perhaps we had the same incompetent pathologist!

I ended up consulting with 3 different facilities, multiple doctors, lots of tests (no cancer found), and then given the option of �watchful waiting� or radiation. I opted for the radiation for peace of mind and to hopefully kill any lingering cancerous cells.

I�ve had a lot of issues related to the radiation and often wondered if I should have went with the watchful waiting, but it is 3 years since I�ve finished the RT, and nearly 4 years since my initial diagnosis, and so far the cancer has not returned.

I wish you the best with your treatment. I think the worst part for me was the waiting, not knowing, and not doing anything.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2025 (ORN of lower jaw)