I am sure that the reason none of us has heard of it is because it is experimental, based upon the original post. Not clear if this is in lieu of surgery, before surgery or after surgery, based on the discussion.

I am all for helping to advance science, but (for me only) I would be reticent to experiment with an untried treatment unless my other options were clearly unlikely to result in a cure or were so disabling as to make them intolerable. Based upon the limited amount I see here, I am not sure that I see those things present.

Also concerned that no chemo would be included in the non-experimental protocol. Chemo has become a fairly standard part of the regimen, and for many, is far more tolerated than the radiation.

Just my observations, and how I would approach things. Not a suggestion or endorsement. I chose the most aggressive treatment they could provide to maximize my chance at a cure. Do I have some issues now in terms of saliva, shoulder discomfort and related? Yep. Would I do it over again, given the same choices? Yep.

Best of luck, whatever you decide.


Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!