Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Wanda,
Forget about the hair thing. That's 100% normal and is in no way life altering nor life threatening.
Unfortunately there is no magic wand and since we can all respond differently to the same Tx and the same meds you just have to explore as many different options with your docs and lets hope they are experienced enough to have many suggestions to try.
I couldn't find really anything that stopped my nausea and I didn't have a Peg and I would even lie to my wife about how much I consumed while she was at work just so she wouldn't make me swallow more. I lost a ton of weight that I didn't have to loose and ended up in the ER 3 times for fluids. Now could I have made it easier on myself? YOU BET and that would have been to consume the recommended amount of water and "food" each and every day. Our body is under attack from the cancer and the treatment and therefore is under a great deal of stress both physically and mentally and it needs all the fuel we can give it to have a fighting chance. It's like a snowball rolling down a hill; if he doesn't give his body the fuel it needs he will only allow more complications to pile up on top of an already bad situation and believe me things can get much much worse than what he is going through. Towards the end of my Tx I abandoned all my pain meds because of the nausea they caused and would stand over my sink after swallowing water or food and close my eyes and hold my mouth shut until the gag reflex stopped. My gag reflex continued at least a month after all my Tx's had stopped.
Please somehow try to get his pain and nausea better controlled and please get the hydration and food in him any way you can.
If you can get him to call me please PM me and I'll give you my contact numbers. Maybe he will listen to a vet that has been there done it.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
|