Hi. John has 2 more chemo treatments and 11 more radiation treatments. Things are really, really rough. He is nauseas constantly. He is taking both Zofran and Compazine, not at the same time, but they really aren't doing a whole lot. He is still drinking water but stopped all food intake by mouth about a week ago. Because he is so nauseas constantly, he isn't using the feeding tube like he should. He is only getting in 2 -3 cans of Osmolite a day.

Right now the biggest problem is gagging. He can no longer talk or he gags and throws up. I assume this is from the mucus and radiating that area? He has lost his facial hair and the hair at the base of his neck. The hair on his head is really thinning out.

It's so hard watching him go through this. He never complains, just takes things as they come. I can't even imagine what is going through his head. He isn't really good at communicating even when he can talk.

John is using the baking soda/salt/water rinse for his mouth along with the Biotene mouthwash. Any suggestions regarding the not being able to talk and the gagging? Thanks for listening. Sometimes I just feel really alone with all of this. People who aren't aware of this type of cancer don't understand the terrible side effects from treatment. Wanda


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2