I think we can all agree on one thing. The PEG is a lifeline for some people that end up on them after oral cancer for life. This is the most extreme version of it's use.

I'm all for using a nasal tube if the term of need is short, and the social implications of it are tolerable. No surgery, no ill effects. There are no absolutes. Believe me I was part of the "I don't want a PEG tube" crowd right up till they forced me to have it. Retrospectively it was a mental thing, only really sick people have tubes hanging out of them right? And I am going to get through this for sure right? Why should I have to have one? DUH. Every tool that make this a faster, healthier, more "wining/healing" travel path through this process should be on the table. Not all of them are things we really psychologically want. Not all of this process of getting through it is rational nor logical.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.