 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
I know you are going thru a rough time right now. Your posts show a much different tone than the happy person going off to Italy. Remember the posts telling about your wonderful trip. Im so sorry you are struggling at this time of your life. Its truly an awful disease that saps the life right out of normally happy people. Very sad.
Please remember you are still a very fortunate person. One thing that caught my eye was your mention of trismus. Being a 21 is still pretty darn good if you ask me. A 21 is limited but not severe and you may be able to get back to the 35, or maybe close. Ive had such a hard time with trismus, I was a 4. At my best with all the physical therapy I only got to 12. Now, you see why I say you are lucky? If I could ever get to even 21 it would be a miracle.
Sending good thought your way.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
