Welcome Jenka. A couple of things struck me about your post that I want to address right away:

1) Chemo: Cisplatin is, as I understand it, a chemo which is designed to enhance the effectiveness of radiation. It does not have the same side effects (hair loss) as some of the other chemos. I was told that having Cisplatin with radiation would increase the effectiveness by approx 15%. Put that in my shopping cart, said I.

2) I hear your frustration and anger at being mis-diagnosed or not diagnosed. Many of us have lived that tale. I was a year before the diagnosis was made - and like you - received many possibilities from physicians because I too didn't fit the profile (despite the fact that I smoked!) I was 49 casual drinker - at the time I was diagnosed I was told the profile was 70 year old male alcoholics. Eventually, you will need to let go of that anger, but boy I sure feel it with you!

Post often = people on this site are AWESOME. There is so much that goes on with "the C word" besides the actual treatment phases. Feel free to post how you are feeling, we've been there and maybe we can help by listening or offering some suggestions.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)