Margaret,
Good hearing from one of my Ole "Radiation Road" buddies.

About the "fatigue and stamina" question; I can't really tell any difference now than before Tx.

I always wondered, since I didn't have tongue surgery (free flap), if that doesn't affect taste recovery?

I had a rare cancer-like lupus condition when I was quite young that caused tumors to form in my blood vessels and capillaries. The effects of that disease and a Chemo called Cytoxan left me with some kidney damage(although I can't tell it).

The kidney issue was a major consideration and why they avoided Cisplatin/Erbitux, and instead, after the SND, just blasted the hell out of me with Tomo, but it adds to my worry about recurrence and re-treatment issues and options.



Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11