5 days left....finally managed to get the gravity feed bags and that has helped immensely! Got far more calories and fluid in today than in the past two weeks. Chemo had to give him fluids yesterday as he was terribly dehydrated despite all the water and gatorade he was drinking. Now have a standing order for fluid at any time he feels it's necessary and I am doing slow drip of pedialyte and water as well through the tube. Going home for the weekend which will help. Then only 4 days next week. We're definitely into the countdown phase then wait a month for a ct scan. Still talking about surgery for at least one of the nodes tho. We are hanging in there.


CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10